Android's Cross Lengthening with Dr. Solomin & Dr. Kulesh (2018)

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dear android！ wow awesome you are just like always with us! Thanks for your message and hope your recovery well.  Best regards.

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Quote from: Android on November 19, 2018, 03:01:42 AMJim and Pope asked if the lastest "update" was real.

Nope! Don't believe it.

I'll be back, nothing personal guys. I'm just a bit lazier than you thought.

So relieved to see you posting from your real profile.

Thanks for dropping by and letting us know.

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Hey Android..How is it going?

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Android... whatever has happened I believe its healthy for your mind and soul to talk about it.
Please reply and explain everything. It will be a relief to get it off. Besides, this forum is still frequented by veterans who may have suffered the same complications as you, they may provide valuable advice for recovery.

I hope to hear from you.

edit:

i just saw he updated his instagram 7 days ago.
seems like he stopped lengthening and has consolidated partially.
+ nerve damage and dropfoot

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Once again we see the exactly same pattern: previously very talkative user, is no longer willing to post even a basic update. Personally, I find it disturbing. Could any of you, dear Veterans, help us understand the mechanism behind?

-> Is it like a plain support circle: once you recover, you no longer feel the need to look back? (That would be the optimistic variant).

-> Or is it a spiral of despair: you have enough pain and fear in your everyday life to even bother posting? (I hope it is not).

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Quote from: (w)heel(s) on February 03, 2019, 06:36:53 PMOnce again we see the exactly same pattern: previously very talkative user, is no longer willing to post even a basic update. Personally, I find it disturbing. Could any of you, dear Veterans, help us understand the mechanism behind?

-> Is it like a plain support circle: once you recover, you no longer feel the need to look back? (That would be the optimistic variant).

-> Or is it a spiral of despair: you have enough pain and fear in your everyday life to even bother posting? (I hope it is not).

The forums are pretty toxic (hell, I often am too), so Android is most likely (rightfully) avoiding it while he focuses on his own life.

Remember that we pay nothing for these diaries. These are people who are using their savings, enduring horrible pain and quality of life, and still bothering to write us about their experience. Let us allow real CLL vets to handle their own diaries as they see fit.

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To Wheels:

I'll help you understand.  Android or any other LLer does not owe you an update or an explanation.

Any post made by any LLer is a gift; not an obligation.

Second guess motivations at your pleasure or peril--your conclusion likely means nothing.

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Quote from: California2 on February 03, 2019, 11:55:21 PMTo Wheels:

I'll help you understand.  Android or any other LLer does not owe you an update or an explanation.

Any post made by any LLer is a gift; not an obligation.

Second guess motivations at your pleasure or peril--your conclusion likely means nothing.

I understand, however, many people who have done or are now doing this surgery relied on others’ diaries. It’s a reciprocal thing isn’t it. I will say that if someone starts a diary and then stops without saying if they are ok is quite worrying especially a worry over the person’s welfare, how is that person etc. So it causes double worry, worry about the person and worry about a possible future surgery.  Many diaries have helped me so I think it’s only right I do one or at the very least say how I am if I decide to start one etc.

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However I will say that it’s possible someone doesn’t want to give too much info on here or elsewhere online when things go wrong and they are relying on their doctors to fix it and want to stay quiet until things have hopefuly resolved. This is probably quite common, where you don’t want to name doctors with things going wrong right now at risk of making the situation worse. Maybe some are worried about doctors reading these forums and/or other online platforms. So it’s understandable.

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Why external femurs?