whats the risk of arthritis after cll. I know its caused by the disturbing of the tibia/femur ratio and interaction of bones and ligaments with joints but how often it happens and what stage of life. I think for cll ppl it starts occuring as early as 35 when the joints can no longer keep up with the wear and repair due to downgraded hormonal profile. In normal ppl who are prone to it this only happens after 65 atleast. cll ppl are fully prone to this (knees for tibias or hips for femurs). Also i've heard walking after that is pretty much over, or atleast full of pain.
do we have any ll veterans who are 40+ and have been post cll now for 10+ years without arthritis. if not then i assume every cll person is likely to have it down the road due to the high percentage. that's when we say gudbye to walking or atleast the crutches come in with unbearable pain during walking. In the end the new height with cll comes with a limited time offer afterall.
Quote from: Cr7 on February 09, 2019, 11:36:27 PM4- Few people who have done it quite sometime ago are Akash shukla (2003/2005), hajnal ban(2002, Australian woman), Mikhail goldreer( the first one to go through the elective CLL, Volgograd Russia, 1992), Thomas keeper( calagry real estate agent, Canada, 2005, guichet patient). These people went public about their surgery. I highly doubtful that they will come to this forum to provide info. Only these guys could tell about the long term effects of this surgery. Dates which I have mentioned might have a deviation of +/- 2 years.
5- @sanity how after CLL there is downgraded hormonal profile and that leads to arthritis?
btw is this mikhail the guy from the barinov clinic?
and the hormones that repairs the damaged cells and replaces the tissues is the somatotropin an also some thyroid hormones. These do continue to be released until late age but the decline by 30 y.o is phenomenal. This is what will guide the food you eat to make new cells instead of just releasing energy.
Quote from: champdo on February 10, 2019, 04:38:33 AMSanity you're making a fairly extreme claim. Any sources on that?
i think there are researches on this but very few as there isn't much data. and no im not claiming im just discussing because this a serious matter. i'd love to be proved wrong but there isnt enough data to suggest otherwise. yea i might be wrong when i said alot of ppl who do ll are prone to it but altering the bones length will definitely cause wear and tear in the joints and increase the chances of tht many times. but if it happens after 50 then we should be fine because we would already be dying due to diabetes or heart attack or cancer or some . just not 40 plz.
Quote from: BeYourBest on March 18, 2019, 12:04:17 AMDoes anybody know how I can contact these guys on point 4? Would seriously like to know how they are doing. I really need to be complication free (as we all do). I mean I am willing to do anything that will help that. Stretches everyday, good diet, Ayurvedic stuff, yoga, breathing exercises, you name it! Until I die! Literally just to be pain free when and if I reach 70!
sometimes physical pain isnt the only problem but physical limitations. and yea i would love to talk to any of them. if u find the contact let me know.
Quote from: BeYourBest on March 18, 2019, 04:33:28 PMI mean as long as those physical limitations do not impact my everyday life then I suppose I can live with it. I mean that as long as I can walk, jog. gym, have sxx like a normal person without pain then great. I would not mind if I am not able to kick above a short guys chest because I don't think I can do that now and it does not bother me. Also, I think I would be okay with not being able to sprint as fast as I could pre surgery. I don't think I've sprinted properly for years anyways and I would change the way I play football. I think I'd be more of a Pirlo like player and just control the game instead of running around like a Walcott (big football fan here lol)!
I will do.
that is the ideal scenario. every ll aspirant desires that not just u.
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