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Posted on Jan 15, 2024, 11:31 am
#11

I strongly recommend you having consultations with all three German doctors (Becker, Köhne, Thaller) if you are planning to do it in Germany of course. Speak to them,ask your questions and see if you like their vibes and atmosphere. It is almost as important as the operation itself. It will cost you around 1,5k. Yes it's a lot, though limb lengthening is not something you want to gamble with. Don't try to spare every little euro! If you are willing to invest dozens of thousands euros, what another 1,5k. As for Köhne, I believe doing unilaterally is the only option, but I don't know for sure. If you do it unilaterally it will take double amount of time obviously.
I am personally doing femurs only.

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Posted on Jan 15, 2024, 11:48 am
#12

Quote from: Russel on January 15, 2024, 11:31:51 AMI strongly recommend you having consultations with all three German doctors (Becker, Köhne, Thaller) if you are planning to do it in Germany of course. Speak to them,ask your questions and see if you like their vibes and atmosphere. It is almost as important as the operation itself. It will cost you around 1,5k. Yes it's a lot, though limb lengthening is not something you want to gamble with. Don't try to spare every little euro! If you are willing to invest dozens of thousands euros, what another 1,5k. As for Köhne, I believe doing unilaterally is the only option, but I don't know for sure. If you do it unilaterally it will take double amount of time obviously.
I am personally doing femurs only.

If a doctor thinks unilaterally ( one leg and then the other) he don't know a   about cosmetic LL imo.
What will happen if there is a complication in the 2nd leg that prevents further lengthening? Will the doctor go back and shorten the first one (which will have probably consolidated already??) doesnt make any sense.
These doctors may be good doctors but they don't do cosmetic LL and they don't know how to deal with short tature patients.

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Posted on Jan 15, 2024, 12:21 pm
#13

Quote from: Marie_Bard on January 15, 2024, 11:48:51 AMIf a doctor thinks unilaterally ( one leg and then the other) he don't know a   about cosmetic LL imo.
What will happen if there is a complication in the 2nd leg that prevents further lengthening? Will the doctor go back and shorten the first one (which will have probably consolidated already??) doesnt make any sense.
These doctors may be good doctors but they don't do cosmetic LL and they don't know how to deal with short tature patients.


You have no idea what you're talking about. All these surgeons have been in the cll field for years. They have more knowledge  than you and I would ever have in our lives. Unilateral lengthening is a justified method which allows the patients to be able to move around, take care of themselves and not be wheelchair bounded. In comparison with bilateral lengthening the complication rate is from minimal to non existent. Saying that those doctors who perform unilaterally don't know cll is completely false.

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Posted on Jan 15, 2024, 3:26 pm
#14

Quote from: Russel on January 15, 2024, 11:31:51 AMI strongly recommend you having consultations with all three German doctors (Becker, Köhne, Thaller) if you are planning to do it in Germany of course. Speak to them,ask your questions and see if you like their vibes and atmosphere. It is almost as important as the operation itself. It will cost you around 1,5k. Yes it's a lot, though limb lengthening is not something you want to gamble with. Don't try to spare every little euro! If you are willing to invest dozens of thousands euros, what another 1,5k. As for Köhne, I believe doing unilaterally is the only option, but I don't know for sure. If you do it unilaterally it will take double amount of time obviously.
I am personally doing femurs only.

That is a good idea - are you doing the same or did you already even?
Money is not an issue in that sense, i agree, i dont care about a few thousands more or less, because it is a big investment anyhow. The only thing i dont wanna afford is the Paley thing which would basically multiply the price by about 2. Or at least close to that.

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Posted on Jan 15, 2024, 4:35 pm
#15

One more thing is with Betzbone you can keep the nail in your legs for as long as you want. But with Precice rods you are making a commitment to removing them a few years later. So with these "unilateral" Precice surgeons you are committing to at least 3 surgeries.

I think Betzbone is the way to go. My only concern is whether the doctor is skilled in treating complications of LL. I couldn't ask this during my consultation because I was very excited looking at the nice environment they have over there. @tilli if you consult with him please find out about this.

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Posted on Jan 15, 2024, 4:42 pm
#16

Quote from: tilli on January 15, 2024, 03:26:30 PMThat is a good idea - are you doing the same or did you already even?
Money is not an issue in that sense, i agree, i dont care about a few thousands more or less, because it is a big investment anyhow. The only thing i dont wanna afford is the Paley thing which would basically multiply the price by about 2. Or at least close to that.

Yeah, I got my surgery done (one leg) with Dr Köhne last year. Right now I am in the consolidation phase. Once the bone is healed I will have my second surgery. I expect get it done in mid spring or so.
US doctors are expensive yes, not only the procedure but the life during rehab there will suck out your finances pretty fast. At least in Germany you are at home

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Posted on Jan 15, 2024, 4:49 pm
#17

After I get the surgery I was thinking why I didn’t come here before to check about doctor staff and city etc…

For me ( for all of us ) that’s will be the biggest day from our life , it’s a life changer .

so if I was you, first of all, not just online appointments go to the person in person and ask they try to feel them and biggest thing say to them you don’t need that they “sell that to you” ( because they will for sure )

But try to take experiences from people here but not just that , try to go yourself and feel yourself. Book 2 days trip to do that. It will not be that expensive I will give you another eye and you get more confidence.( or not )

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Posted on Jan 15, 2024, 5:17 pm
#18

Quote from: Rossi46 on January 15, 2024, 04:49:44 PMAfter I get the surgery I was thinking why I didn’t come here before to check about doctor staff and city etc…

For me ( for all of us ) that’s will be the biggest day from our life , it’s a life changer .

so if I was you, first of all, not just online appointments go to the person in person and ask they try to feel them and biggest thing say to them you don’t need that they “sell that to you” ( because they will for sure )

But try to take experiences from people here but not just that , try to go yourself and feel yourself. Book 2 days trip to do that. It will not be that expensive I will give you another eye and you get more confidence.( or not )

I went to Becker's clinic. I am still undecided. Everything looks good over there but I am a bit worried about his ability to handle complications if they arise. I didn't even think about this when I went there, but I was talking to some other guy on DM who said he or she cancelled the surgery because he felt scared about the same thing.

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