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Posted on Jul 27, 2017, 3:29 am
#301

Ok guys,  heres's an update

I can walk  now, and not just walk, I walk faster than   a good % of the people in the street. I have no limp. I mean zero

I  do regret the achilles surgery, and in some ways it was the worst/ most idiotic decision I ever made but I'm doing so well that  I'm not sitting at home regretting it. I shouldn't have gotten it but honestly, my life now is pretty much exactly how it would've been if I had not gotten the surgery. The exception is I still can't run and  one of the scars isn't the greatest, but  it's possible I might run in the future.

My body has always healed well. It's 100% genetic so I can't give advice  to others on recovery. 99% of    the population would be  have a seriously reduced qol if they had   the complications I had and made the mistakes I made

I lost all the weight I put on since the surgery. I'm now 75 kilos/ 168 lbs. I have long legs. I wear a size 32 length  which is very very long. My uncle who is 6 feet tall  has  a size  29  pants length

I might post a video as You will able to judge my walking.  You guys know how negative my posts can be so if I say I'm doing well I think it means something.

I can recommend Bagirov for this surgery. I can also say Monegal did a proper correction.  Don't  go to India!. I'll recommend Monegal/Bagirov  all day over any options in India

I still have a rod and screws in my left leg. I am almost positive I will even  be  a bit better  after everything is taken out

Monegal is keeping his promise and removing the device; either next week or early Sept

I never think about my height anymore so the surgery   accomplished my goal

Stay healthy


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Posted on Jul 27, 2017, 4:00 am
#302

That is awesome to hear Crimson. Glad you are getting better.

Thanks for taking the time to write the update.

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Posted on Jul 27, 2017, 6:56 am
#303

thank you

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Posted on Jul 27, 2017, 6:59 am
#304

I have a doubt, some Pili patients wrote that after Atl they can run or even jump, but you are totally against ATL, do you think you had bad Luck on It?

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Posted on Jul 27, 2017, 7:04 am
#305

not bad luck.... you lose power, 100%   guarantee due to simple physics

but i'm okay and don't want to focus on ATL. I can live my life 100% normally

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Posted on Jul 27, 2017, 7:12 am
#306

Ok, so I Will try to avoid that crap, although with tibia lengthening is very difficult to do It, good job!

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Posted on Jul 27, 2017, 9:21 am
#307

congratulations crimson

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Posted on Jul 27, 2017, 10:44 am
#308

I am really happy about you Crimsontide.
Personally I really couldn't feel happy with my condition due to my loose tendons and I could run, not fast but still run.
But I am glad that you feel ok with your condition and your body, after all this is what matters with LL. To feel ok.

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Posted on Aug 21, 2017, 7:11 pm
#309

Good evening everyone 🙋,I'm a new member on thi Community,i've registered like 5 minutes ago😀.Before that I have spent a lot of time reading multiple diaries and patient's experience.It's such a great Community despite the Apotheosis's incredible betrayal 😱.Yeah, I have spent a lot of time reading also the story regarding the "old forum",it was very shady but also exciting.It was like reading a thriller book including a terrible villain.Like an adventure✊.You guys have been so brave managing to create a true forum without fake advertising💪💪
Despite this introduction and apologizing for my bad english writing skills(Yeah,I'm living in Italy☺) I'd like to know how crimsontide is doing.This diary seems to not be updated since 2016(correct me if I wrong).I would know if crimsontide managed to have a prothesis because of his problems with the left leg and how are his condition now.
Best Regars for all of You

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Posted on Oct 7, 2017, 10:04 am
#310

Still waiting for Monegal to take the rod off
My walking Is fine but a bit  exasperating trying to get this rod out.   


I'm about to say forget it and go to another Dr to do it. That's all there really is to say now.

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