Tramset or tramadol works well with some people but not all
Oxycodone is different from them, yes stronger opioid than them
In korea, CLL patients receive injections for acute pain attacks at night
Generally they use
Tramadol pills
Tramadol shots
Oxycodon pills ( 1 or 2 pills a day depending on person)
Pethidine shots( the strongest pain med they use)
In EU some get morphines
They change meds depending on the conditions
Some receive shots before PT so that they endure well during vigorous PT sessions
For nerve pain generally Lyrica and vitaminB12 combination used worldwide
But if it doesn’t work then looks like some need neurotin gabapentine for strong nerve pain attacks
Hope you get pain managed well
Yes sleeping is important
I think it overweighs these risks of pain meds
Meds are temporary thing anyways and very well monitored so that there’s no addictions
In the hospitals where they don’t prescribe proper pain meds, some patients got PTSD after getting prolonged severe pains post CLL surgery
That’s no good
i personally think it is a very good idea (i had thought abt it) and I disagree with other commentor who says you can achieve same thing with pillow, in my experience you can't there is definite difference, one can be controlled as you wish u can never do that kind of thing with just pillows.
Quote from: Nestor on December 12, 2019, 04:11:36 PM@great321 it's difficult to describe, it feels sort of like nerve pain that aches all the way down my legs. During the day it's fine, it only comes on at night when I'm in bed
That's weird but I'm pretty sure that it will go away like every single pain I had so far! What kind of mattress are you lying on? Because I had muscle pain for 3 months and it turned out that it was the mattress that had caused it because as soon as I lay on my own mattress at home the pain vanished. Funnily my muscle pain was also less present when I was propped up in bed at a 90 degree angle. Since when do you have those nerve pains?
Quote from: Nestor on December 13, 2019, 05:39:07 PM@Js I'd love to increase the dose but my doc has a strict schedule for taking the meds. If I feel pain during the night I just have to tough it out and wait till the next day until it's time to pop the pills. Does your doc allow you to take a pill whenever you feel pain? Man that would make my life so much easier 😆
It might just be my imagination but I find if I'm propped up in bed almost at a 90;degree angle the pain isn't quite as intense, that's why I was wondering about the hospital bed. Have you tried sleeping in a normal bed to see if there's any difference? Wanna be my guinea pig? Lol
@Temaki Tramal is a type of opioid as far as I'm aware, I think it has less side effects apparently
I'm not a doctor but that sounds really rough man - not being able to take your painkillers when you're actually in pain. I agree with TemakiSushi - unless you have an addiction problem or some other medical condition preventing it, you shouldn't hold back on painkillers since it will make PT and recovery that much more difficult. When I was in the hospital one of the nurses explained to me that the lower the pain, the better the recovery and it's better to avail of the needed painkillers to keep you focused and working hard in PT.
Not in any rush to try a normal bed anytime soon lol
@Temaki Thanks for the info! I must go buy some vitamin B supplements. Yeah shots before PT sessions would be awesome, there's a few stretches I find excruciating 
@ Lalbad Yeah I agree, I just think it's not possible to get the same positions in a regular bed no matter how many pillows you use
@Great The mattress I have is very soft, not sure if that's a good or bad thing for this condition. The night pains started about 5 days after I started lengthening and haven't stopped since.
@Js I've spoken with my doctor and he advised to take a painkiller if I wake up during the night, I've done that the past two nights but hasn't made any difference, not sure if the painkillers are too weak or if my system has just gotten used to them that they don't have the same effect. I think you're right my PT has gotten a lot more difficult lately mainly due to lack of sleep, I actually fell asleep one day with the physio I was so tired 
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