if I do 6 cm tibia with paley using stride - will I be able to walk in 4 weeks and go to office 4 weeks after surgery and lengthen and consolidate at home? thanks
Even with Stryde, you will have to lengthen and do PT/stretch multiple times a day, plus deal with all the pain and aching that comes along with it. I would not assume that you will be able to work a job while doing this.
As for Paley, do note that IIRC he generally does not permit tibias beyond 5cm, and does not permit lengthening at home in 99% of cases.
I don't know about walking.
Quote from: FormerKidd on July 01, 2018, 04:14:49 AMEven with Stryde, you will have to lengthen and do PT/stretch multiple times a day, plus deal with all the pain and aching that comes along with it. I would not assume that you will be able to work a job while doing this.
As for Paley, do note that IIRC he generally does not permit tibias beyond 5cm, and does not permit lengthening at home in 99% of cases.
I don't know about walking.
OK, so the stryde was unnecessarily hyped then, it does not offer any material benefit
Quote from: 7231 on July 02, 2018, 09:14:04 PMOK, so the stryde was unnecessarily hyped then, it does not offer any material benefit
Seems like it's best used as a good back-up if you're having minor complications. Where if bone isn't consolidating as fast as you'd like, instead of having to wait that extra time to walk, you'll be able to weight bear when the wounds are closed etc.
Barring everything goes well with precise 2.2 i'd say it's not worth it as much yeah. You cannot really pre-gaurentee a great lengthening and consolidation though so it's a good bulletproof vest to have.
Just my 2 cents
Quote from: FormerKidd on July 01, 2018, 04:14:49 AMEven with Stryde, you will have to lengthen and do PT/stretch multiple times a day, plus deal with all the pain and aching that comes along with it. I would not assume that you will be able to work a job while doing this.
As for Paley, do note that IIRC he generally does not permit tibias beyond 5cm, and does not permit lengthening at home in 99% of cases.
I don't know about walking.
The only case I know of when Paley allowed someone to lengthen from home was when Hirrucane Irma (? Or some other major hurricane in 2017) was approaching Florida and there was a legit chance of losing electricity for over a week. One of the patients had fast bone healing so one week w.o lengthening would have prematurely consolidated his bones. That patient was allowed to lengthen at home for a week. Otherwise no exceptions.
Quote from: 7231 on July 02, 2018, 09:14:04 PMOK, so the stryde was unnecessarily hyped then, it does not offer any material benefit
No, with Stryde, the rods in the tibia would be strong enough for most to stand and walk sooner, although it's not clear how much sooner -- could vary based on patient and doctor. Not a lot of data points yet.
Remember, there's 3 main phases to this, before most people move on with their lives:
1. Surgery (~1 week)
2. Lengthening (2-3 months)
3. Initial Consolidation (1-2 months)
For many Stryde patients, I believe they may be able to go about their day-to-day life towards the beginning of that third phase rather than the end. That's potentially a huge improvement.
Quote from: Android on July 03, 2018, 06:36:39 AMRegaining independence so quickly is worth the little extra over Precice 2.2. It's only like $5000 more wasn't it? Not a bad investment if you're paying that much for Precice anyway.
I suggest you read OverrideYourGenetics' diary, he got to meet a Stryde patient first-hand.
Independence is getting to keep your job without needing to quit for LL, independence is beign able to go back to work and lengthen at home without being confined to florida - Stryde is not providing any independence on that respect, it is just providing some additional walking ability.
I suppose we have differing definitions. To me that's a bit more than independence, what you're describing sounds like a recovered person. Independence to me is being able to get around on your own without having to rely on others so much. Have you read fallen's diary? He went back to work quite quickly, and while he was physically present, he was less than mentally ready to be productive.
The benefit would be that you'd be able to participate in more strenuous physical therapy quicker, perhaps leading to faster recovery overall. I'm sure it's big motivational boost as well, to be able to walk so much sooner. Eliminating the risk of nail breakage is also a plus.
And just because a nail can hold more weight doesn't change the rest of the procedure. It's tough, invasive, painful, and you shouldn't rush it. LL is nothing like a nose job even with Stryde, but it's the best we've got for now. If Dr. Paley was my doctor, I wouldn't think twice.
Quote from: 7231 on July 03, 2018, 11:54:04 AMIndependence is getting to keep your job without needing to quit for LL, independence is beign able to go back to work and lengthen at home without being confined to florida - Stryde is not providing any independence on that respect, it is just providing some additional walking ability.
Well, this is a very major surgery, with major risks. And look at some anecdotes we had posted on the forums about some external patients.
Quote from: Android's DiaryThe doctor also shared stories of non-compliant patients, like a person who flew home one day post-op (!) and decided to lengthen 3 mm a day (!) because he was in a hurry. In the end the doctors were able to help him to recovery, but it was a tough one. Another patient lengthened 13 cm on his femurs and 7 cm on his tibias. Again, very tough recovery, and having joint problems.
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