LL with Dr Rozbruch 2017-2018

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aw cmon, no updates?

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Quote from: lon chaney on January 23, 2018, 06:48:09 PMaw cmon, no updates?

You might try sending a PM, he'll most likely get an email notification.

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Just had my second post op with Dr. Rozbruch, I have distracted 3.4 cm.

In the last few days, I've really started to feel the muscle tightness and knee stiffness other diaries have associated with lengthening and it has been a couple of difficult days lately. I feel like i spend 5-10 minutes stretching to get 15-20 of "not stretching" life, then I have to get back to 5-10 min of stretching to get another 15-20 min of "not stretching" life and repeat all day which gets tedious and boring. And I keep it up at night as I have to wake up to stretch every 15-20 min (really crap sleep). I was also gonna try to sleep opposite my headboard, so when i need to stretch i wont have to leave the bed, I can just rest my feet on top of my headboard and push my knees down to get a good stretch right in bed. Also, I can sleep on my side now even though I can kinda feel the screw spot, but the tightness makes it tough to sleep for long.

As a result, Dr. Rozbruch recommended reducing to .66 mm/day for a week before going back to 1mm/day. I'm only on day 1 of .66 mm/day and wow do I feel a lot more comfortable! Sometimes, I think it might just be placebo but it makes sense that soft tissue handles smaller lengthening per day better. My xrays today looked great, good bone formation but not too much such that I need to speed up my distraction rate to prevent pre-consolidation, and my range of motion is still pretty good at 3.4 cm.

I think I might do 6.5 cm max, just because I really do think the less you do, the better your recovery will be, but again it has to be enough to make this whole experience worth it (min = 5 cm, in my opinion).

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Keep it up bro, I started tightening around 3.5cm as well. Are your arms long enough to be able to push down on your knees to keep them straight? That's a very effective exercise. By this time I was no longer able to and so had to have a helper to push them down for me.  It's the best stretch to keep your knees straight and avoid bending. 

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Quote from: ShortLivesMatter on January 24, 2018, 03:24:02 AMKeep it up bro, I started tightening around 3.5cm as well. Are your arms long enough to be able to push down on your knees to keep them straight? That's a very effective exercise. By this time I was no longer able to and so had to have a helper to push them down for me.  It's the best stretch to keep your knees straight and avoid bending. 

Thanks pal! Luckily for me, at this point, I am able to keep my knees really straight and my arms are long enough to push down on my knees but they don't go down any further. I took your advice and barely spent any time in the wheelchair and kept my legs straight for as much time as I could which I think helped a lot.

I was sorry to hear you had to wait a bit longer to fully weight-bear, I hope you are still in good spirits! I envy you a bit, can't wait to be done with lengthening haha

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Hi BigDreams55,

Glad to hear your progress and I hope you will lengthen and recover soon.
I have my surgery schedule for end of the feb and I was wondering that how much effort it takes to walk ? At the stage that you are in right now, can you walk on crutches? I wanted to go to my office at least once a week after a month of post surgery. Do you think it is too ambitious?

Thanks

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Quote from: sgaurav00719 on January 25, 2018, 11:46:44 PMHi BigDreams55,

Glad to hear your progress and I hope you will lengthen and recover soon.
I have my surgery schedule for end of the feb and I was wondering that how much effort it takes to walk ? At the stage that you are in right now, can you walk on crutches? I wanted to go to my office at least once a week after a month of post surgery. Do you think it is too ambitious?

Thanks

I walk with a walker, I think crutches would be dangerous at this point because of lack of balance and strength. I've been able to work remotely, but there is no way I could see myself going into the office during the lengthening stage of this surgery.

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Quote from: bigdreams55 on January 27, 2018, 06:17:22 AMI walk with a walker, I think crutches would be dangerous at this point because of lack of balance and strength. I've been able to work remotely, but there is no way I could see myself going into the office during the lengthening stage of this surgery.

how much do you weigh?

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About 155

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Hey everyone,

Had another post-op today, I have lengthened 46 mm. Dr. Rozbruch said my ROM was still very good and that my bone formation is great so far. I'm getting tired of lengthening, so hope to finish lengthening by end of month (will achieve 60 to 65 mm).

Also, I met SLM at Rozbruch's office, great guy! It was very uplifting to see how much progress he had made, as it gave me hope for my future.