Quote from: Ashoka1 on December 27, 2013, 11:46:13 PMI asked our new physio about it and he says he saw the same thing in 5 Sarin patients. He said that its mobility came back for them after frame removal. So, i guess that's all I can hope for now. It'll suck if I have a paralyzed toe for life.
Is your physio Harry? It's nice of him to offer you some comforting words.
Sorry to hear about your plight. I guess some of us have been through the same period. But somehow, everything works out in the end. I planned to take 3 months off of work for this procedure in early 2013 but ended up staying there for 6 months. Luckily, when I came back, my company tried to hire 5 people but no one could do my job. So I got my job back. Beside reaching 8cm in the end, that was the only good thing that happened to me in 2013.
I didn't follow your story. How much cm do you have now? And how long have you stayed there?
LON with the boys at Dr Sringari--India (Complete)
Stop downloading Ashoka1. It's clogging the connection. >:[
Quote from: Ashoka1 on December 27, 2013, 10:58:43 PM
Machine, I know you're an Indian, bro. Do you live near Gurgaon. If so, you should drop by the guest house. It'd be sweet to meet in person. Let me know if you can. I'll pm the address.
thanks for the offer but i can't since my place is like 6 hours through bus from gurgoan ,i actually live in a different state . And there are other reasons too 
anyway , i was there at delhi a week ago and i met Shorty and Disobedient , they were staying at a hotel .
Quote from: Medium Drink Of Water on December 27, 2013, 11:34:23 PMThat was common in Beijing too. What people "turned" always got more and more inaccurate until they stopped bothering to keep track about 2 months into it. Trust the doctor's x-ray measurements.
i would believe in trusting the doctor's x-ray measurements too , but i the measurement here is taken as said by Russianblues
Quote from: Russianblues on December 27, 2013, 03:45:57 PMThe only line of defense stopping any of us from leaving with a discrepancy is a $4 shrunken x-ray done by random faceless "technicians". I'm thankful I've got this far with my only complication being debilitating knee pain that hasn't subsided in 3 months.
During my lengthening , my roommate came out with a easy method to get accurate measurement . and i believe i got 90% idea how
much length i was at..!! the method was as follow
take x-ray with the wrench or any other metal beside your bone gap . ie in the image below.
now the calculation
accurate measurement of the wrench or any other metal in real = x
accurate measurement of the wrench or any other metal in the x-ray = y
accurate measurement of bone gap in x-ray = z
*(make sure the bone gap is very accurate from the edge of the bone cut , since some have good callus formation )
x divided by y ratio is multiplied by z = your accurate distraction length .
* make sure every measurement is accurate since even 1 mm could make difference in calculation .
through this measurement you will get a accurate idea of how much length you have gained so you can keep track of your length .
During frame removal the doctor will measure accurately on the table with some device , so no need to worry for final length or discrepancy.
Point your sanitized fingers somewhere else, hand_sanitizer. My room-mate and I have been lying in bed without internet for 5 days!!!!
Why does every other doc's xrays come out grey, but ours are some dark blue hue? Anyway, Harry said he's finding an alternative hospital to xray at. Hopefully, they are more accurate.
Quote from: Smallguy on December 28, 2013, 01:33:01 AMIs your physio Harry? It's nice of him to offer you some comforting words.
Sorry to hear about your plight. I guess some of us have been through the same period. But somehow, everything works out in the end. I planned to take 3 months off of work for this procedure in early 2013 but ended up staying there for 6 months. Luckily, when I came back, my company tried to hire 5 people but no one could do my job. So I got my job back. Beside reaching 8cm in the end, that was the only good thing that happened to me in 2013.
I didn't follow your story. How much cm do you have now? And how long have you stayed there?
You were with Sarin? How has your recovery been?
Machine,
That spanner ratio calculation looks like a good idea. Thanks.
Quote from: Ashoka1 on December 28, 2013, 07:33:27 PMWhy does every other doc's xrays come out grey, but ours are some dark blue hue? Anyway, Harry said he's finding an alternative hospital to xray at. Hopefully, they are more accurate.
I think the gray ones are straight to digital. The ones in Beijing had a green tint if I remember correctly.
Quote from: Ashoka1 on December 28, 2013, 07:37:43 PMMachine,
That spanner ratio calculation looks like a good idea. Thanks.
It would be even better to ask the doctor for the length of the nail. It's inside your bone, right in the middle, instead of lying directly on the x-ray table a few cm farther away from the camera than most of your leg.
Quote from: Ashoka1 on December 28, 2013, 07:34:10 PMYou were with Sarin? How has your recovery been?
Hey. Yeah, I had LL with Dr. Sarin on Jan.7. I had a lot of complications and drama while I was there. I even cried while Harry was my physiotherapist. The first month, the pin was hitting the nerve on the side of my knee, so I couldn't bend my knee for a whole month no matter what kind of stretching Harry did. Then finally, they gave me an operation to cut the nerve. Then I had a knee infection, which made me become incapacitated for whole month of Feb. After that was gone, I realized my left leg wasn't lengthening even though I turn 1.25-1.5mm per day. Then again, they took me to hospital for some tweaking of the frame. I thought the issue was resolved, unfortunately, it didn't. By April, the 4th month, there was a 3cm discrepancy between both of my legs. My right leg was at 6.7cm and my left was only at 3cm. At that point, they finally admit that my bone has consolidated on my left. So no matter how much I turn or how the metal frame bent, my left leg wasn't lengthening. So I finally have to be taken to the hospital to have my lower left leg tibia re-broken.
At that point, my ex gf also dumped me and I felt suicidal (but I'm fine now). So for the next 40 days, I turn my left leg at 2mm per day. Yes, it was crazy. But by the end of May when the frame was removed, my left was at 8.1cm (from 3cm) and my right was at 7.8cm. I asked Dr. Sarin to make it 8cm at the operation room and he agreed.
When I returned home at the end of June, I had a massive 6cm of ballerina. I wheeled myself to the airport and they weren't about to let me onbroad due to my condition. But I begged them. So they let me onboard and I flew back home in a wheel-chair. My aunt didn't recognize me at the airport. She was thinking of some dark-skinned begger from a third-world country was waving at her.. But it was me.
I hit the gym every single day. First I cycle. Then I try the steps, from 5mins to now 60mins per day. I also lift heavy weight standing. My only advice to any future LL patient is, don't depend on your physio for your recovery. Your PT can't do the work for you that is needed for recovery.
Now I can lift 90lb (how much is that in kg?), walk up and down the stairs without requiring to hold on the rail, and can stand up taking a shower. Have no ballerina and don't feel any pain. Machine's roommate was here in Vancouver a few weeks ago. He attributed my recovery due to my dedication of going to the gym!
Anyway, that is my story :-)
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