My diary of quadrilateral Precice2 LL with Dr. Gokhan

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Quote from: Mike G on July 28, 2024, 06:45:45 AMIt looks extremely painful. 

Do you think it may be wise to get second opinion from another LL orthopedic surgeon (perhaps even overseas online consultation) because there's no way you're the first person something like this happened to during lengthening process (?).

Yeah, always is better to get a second opinion from best doctors. The question is if they answer and how much it cost... because they treat your "question" as a consultation and charge you hundreds dollars...

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Quote from: Ted68 on July 27, 2024, 01:53:01 PM27 July 2024

Guys, i am in deep s-hit. My both right tibial proximal screws wants to go out !

https://photos.app.goo.gl/kEBojeaZ6usn2k51A
https://photos.app.goo.gl/LH76UduzRkVzFJxX9
https://photos.app.goo.gl/EEmoJi1ziri38MRVA

This is the result of walking exercise, which actually started my tibial callus finally.
So, as you can see, if i dont exercise i get no callus. But if i exercise, my screws pops up like crazy !
I lost a screw to my left tibia, but the remained one is stable. Unfortunately,  the right tibial screws wants to come out both, in the same time.
So, i am fu**ed !
My problems never stop coming, I don't know what is going on !

These engineers who created the Precice system should take care of every bad situations are coming and to prevent them.
My screws has only 5 mm thread, the rest being only smooth metal which pass through the nail. But, because the strong forces in the bones when walking, that thread broke  the bone very easy and the screw has no stability point anymore and move freely !
And I am slim, only 74 kg at 1.82 height, so nobody can say "Well, you are fat !"

So, this is unacceptable !
Now i stopped my normal daily exercise, so I stopped my recovery !...
I only go from bed to kitchen and to bathroom. The rest i stay in bed, just not to loose completely my screws. Until I will not have a strong callus in my tibias I cannot do anything, but the callus could be strong enough in one year from now !

I hoped I could start walking freely in maximum 3 months, because I have a flight ticket and I didn’t want to go with walker or canes… but now I am pretty sure I have to postpone everything !

I don’t know if there is a resolve for my problem, because the doctor cannot remove it and replace it with something better. He said all it can be done is to cut my skin and to push back the screws.
I am desperate and I am not sure if I can fix this s-hit.
Tell me guys if you had this problem and how you managed it...

Hi, I am pretty new to this. Was wondering to ask why exactly the screws got loose? Does it usually happen with Precice because I've never heard about it on this forum, maybe doctor's error or something else?

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Actually this is the question I asked here, because I don't understand either.
My doctor said "is because the late callus formation and the screws cannot resist to all this effort you put on them during your walking exercises". OK, sir...

There are few guys who did Precice on tibia, but they are not coming here to tell me their experience.
So, for now I confront myself with this s-hit and I stopped walking exercise and the recovery, just to keep the screws in actual position... Otherwise, if are coming out, I will be completely handicapped and I will stay again in wheelchair to the completely callus formation...

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8 Aug 2024

Yesterday I did again x-rays, so I can see how is my callus and my popping-up screws.

https://photos.app.goo.gl/U7viA1ervFWQdiXA9

https://photos.app.goo.gl/JJLcNqqEiA4kqqei6

So, as you can see, I got a massive callus on femurs, which is better than expected, and more callus than 42 days ago in tibias, when I had previous x-rays... which is good !
You can go on my 27 June post and compare…

But, as you can see on right tibia, the upper screw has the thread completely out... so thats why I stopped my walking exercises...

If you remember, 2 months ago doctor Gokhan asked me to go and remove my temporary ankle screws... But, guys, I never thought the doctors in my country are so st-upid !
I was talking with 3 of them and they are afraid to do it... Its unbelievable !
Also, I want them to screw back my upper proximal one... but no chance. I showed them all technical information, as size, length, hex wrench, etc, and nothing.
And I am talking about the best and busiest orthopedic hospital in my country, not a rural one.
They pi-ssed me off, they all blame me saying I am stupid and I wasted my money and I risked my health... but no one want to help me because they are afraid to not make a mistake !...
A bunch of pu-ssies !

I really don't want to waste money and time to go in Istanbul for a 10 minutes surgery session, because that would be re-tarded, and my doctor agreed that... But he said finally would be the only solution.
Now I am still looking for a brave one...

I stopped my walking daily routines and I lost flexibility, strength and endurance... but I have no choice.
I am happy at least I can still drive my car.

I am sad and frustrated...
 

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Hi Ted68. Just after your surgeries where you could not weight bear. Did you then did exercises with your legs lying down on your bed? Best.

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Quote from: Bob on August 25, 2024, 06:42:11 PMHi Ted68. Just after your surgeries where you could not weight bear. Did you then did exercises with your legs lying down on your bed? Best.

Hi, Bob.
Yes, in my paid package services was included every day PT, so a guy came to me and I did right away after surgery something in bed... for 4 months and a half in Istanbul.

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Hi Ted,

Thanks for sharing your experience, it is certainly very eye-opening and we all really do appreciate it!
Best of luck on your recovery - certainly, so many obstacles but it seems that you have a strong character and will push through any challenges as they come.

Do you have any diary updates recently? How's the callus and recovery coming along? Did you get the ankle screws removed?

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Quote from: dingdongditch on September 08, 2024, 10:29:48 AMHi Ted,

Thanks for sharing your experience, it is certainly very eye-opening and we all really do appreciate it!
Best of luck on your recovery - certainly, so many obstacles but it seems that you have a strong character and will push through any challenges as they come.

Do you have any diary updates recently? How's the callus and recovery coming along? Did you get the ankle screws removed?

Hi, man. Thank you for your comment...
Yes, i have some sad updates...
...................................

10 Sept 2024

Because doctors in my country have s-hitty character and they think they are kind of Gods and dont want to mess helping me or because other doctors charge me an insane amount of money for a fu-cking easy 5 minutes job... I didnt remove the syndesmotic screws yet !... Unbelievable !
And i should have it done 2 months ago already !

Regarding my popping-up tibial screws... they stopped popping when i stopped the walking exercises and all the rest of muscle training. So, now my muscles got atrophy again, especially the Medius Gluteus, which is the most important muscle in walking balance and i cannot walk anymore freely.

But, the worse news is that the doctor asked me few days ago to go in Turkey for syndesmotic screws removal and for proximal PEG screws removal... and to replace them with plates !
He said also maybe he will insert iliac graft to accelerate the callus build !
When i heard these i got crazy, because that means a lot of stress to travel and another invasive surgery... which i dont want to do it !
Also, to insert plates needs long cuts, so i will have big scars and i hate that !
And, honestly, i am not sure if that plate can bear my weight (because, as i know, its one sided plate, not both sided). I am afraid to not get some deformity if the plate bend !

What is enough, is enough !
The only one surgery i want to do it is for all implants removal, done in one time surgery... the last one !

I want to know why my PEG screws are coming out, 3 of them already !
I never heard to happen such thing to other guys who did Precice on tibia !
If you know some cases, let me know, guys...

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23 Sept 2024

Today I got 9 months from the first surgery and i should walk freely... but i am not !
Nothing good happened, only bad news...
- No ankle screws removed yet.
- The left calf is unstable and i feel like a rotation in the implant.
- I have very big pain when standing up and walking to bathroom.
- My ankle tendons got very stiff again.
- My muscles got atrophy back !
- My knees are semi-flexed permanently.
- My left semitendinos / membranos tendon is still jumping with big pain, on every left leg motion.
- And i suspect i have few degrees Procurvatum on my tibias... as i saw on my x-rays.

In 3 days i have an air ticket, paid long time ago, and i should already walk good to fly well... but i am not !...
This is a long time flight, about 24 hours total, to a different continent, with 2 planes and lot of waiting time in airports. So i cant fly and, anyway, I dont want to go with canes and walker plus a lot of pain !
So, i tried to change the date but they give me only one month later, since are 11 months already. I asked them to give me a voucher so i can buy a new ticket in May, because i should be much better at that time, so they asked me to give them a certificate from my surgeon which saying i am not able to take long flights because my condition... I asked doctor, he sent it to me few days later and the KLM agent asked me to wait for a different department decision... I was waiting for one week and finally I found they changed their policy and they dont give vouchers anymore, so i lost my money now !

In my country we had a long and extremely hot summer and now finally is ok, so i could go out on street, park, etc, to walk... But actually i cant, because i am fu-cking handicapped and staying home in bed 99% of time !

So, all these happened because the fu-cking Precice PEG screws came out and i had to stop my walking training !

Soon i have to do a new set of x-rays, hoping the tibial callus is better, because this is my only hope to re-start walking...

Luckily i dont need to work, i dont have obligations to anybody, i am financially relaxed, i have my house paid and overall i am a tough guy  !.... But, for a weak young guy with nothing clear and nothing stable, THIS SITUATION WOULD BE IMPOSSIBLE TO MANAGE.
So, keep in mind young guys, if you are not prepared for all kind of sh-it which could happen... you will be fu-cked !

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Yes, I will not go to Turkey for sure just to save some money but I wish you to recover for sure.