Man i hope all goes well for you, I just have to say that in hindsight maybe you should consider the plating option, maybe you can do it with Shah later if you change your mind.
Because exfix only takes an absolutely insane ammount of time, thats part of the reason why i didnt want to do more than 4.3 cm. At 5.5 cm lengthening, it could end up taking 8 -10 months in frames i think. Its very very hard mentally, especially if you want to keep it hidden from all your friends.
No More Mal-Kahn-Tent - External Tibias - Dr Parihar
Just make sure you take that after meals because it can cause gastric ulcers.
Also long-term intake of NSAID is related to heart attack and stroke.
Opioids on the other hand can cause dizziness and potentially addictive
But of course if the pain is there, no choice but to take these meds.
Quote from: Wannabegiant on August 08, 2014, 03:26:18 AMAt 5.5 cm lengthening, it could end up taking 8 -10 months in frames i think.
That's only if you have ty consolidation rate. At Ilizarovs centre the number they give is 2 month for 5cm and 1 month extra for every 1cm over, and that's standart cons rate. I've lengthened 8cm on femur, and my doc told me I can take the frames off in a month, but I'll probably give it 2 months just to be safe.
Update 8/8/2014
This last week has been much better than the week before. A combination of the NSAIDS and turning less has worked great for pain management. I hadn't put any weight on my legs for about a week, scooting to the restroom and staying in bed all day, and when I first tried walking again it was as if I was trying to put weight on my legs for the first time. I realized then that walking would not get any easier if I kept avoiding it, so I pushed myself to stand for longer periods and to start walking to the bathroom and back again. The first few days were very difficult, but after getting over that hurdle it just got easier. The other day I managed to walk out into the lounge, downstairs, and to the ATM machine from the auto rickshaw after being driven near it from the hotel parking lot. Aside from some pressure on my legs after resting, I feel a lot stronger than before.
Yesterday I saw Dr Parihar again and he gave me an examination and went over my x-rays. He decided that 8 days of the NSAID were enough and put me back on Ultracet, which is a pain reliever that's much less strong and isn't an NSAID but should help some. He didn't want me taking more of it because of its effects on the quality of regenerate and the acidity (though he did give me an antacid to take with it earlier). He talked a bit about how in India they're probably more used to pain tolerance than people in Western nations, and unlike some Western doctors who will decide to pump you full of drugs for pain relief a lot of doctors in India would try to avoid giving you a bunch of pain meds if possible. Dr Parihar isn't keen on giving strong pain relief medication after discharge from the hospital, because of the effects from taking such drugs, not only in terms of bodily side effects but also how some will affect you mentally - he doesn't do cortisone injections for example because they can make you loopy. One interesting thing he said is that in terms of pain, half of it is a mental thing and that if you're depressed or not occupying yourself with things throughout the day and only focusing on the pain, then it will seem much worse than if you were in a good mood or you were giving yourself things to do. He said it's like the difference between lighting a candle in the day or at night. The candle is the exact same no matter what time you light it, but you'll perceive it differently based on the surroundings. I agree with him that half of it is completely mental and that's probably why some doctors have told me that the most optimistic patients have the best results.
When I left and was waiting for the chemist to give me my medication, a woman came up to me downstairs and asked all sorts of questions about the frames and why I was in them. I just told her I was correcting a slight bowing to relieve pain and didn't feel like telling her I was doing this cosmetically. A few other people came up to me and asked me if I had an accident. Fortunately they didn't inquire further when I just said no.
Got myself a wheelchair today from a guy who makes orthopedic appliances named Mr Shringare. He's the one who gave me my extra wide walker earlier. I paid 26,000 INR for it but it should come in handy back home because our parking space is so far from the apartment. Mr Shringare is a nice guy whose English is rather good and it was nice to be able to communicate with someone new - the only people here who I can communicate well with in English are Dr Parihar, Dr Divya, the physios, and the hotel general manager. He showed me his leg where he had an injury that Dr Parihar operated on and I saw the faint pin site scars from the monorail fixator. He told me that he knew Dr Parihar from when he was still an undergrad and that he's the only doctor I should see in India for Ilizarov-related surgeries. I asked if he knew about Dr Shah and he told me that he know him but that Dr Parihar should be the only one to consider for these things. It was nice talking to a prior patient who was pleased with his surgical result. I have to say that Dr Parihar has a really good reputation here, especially considering that because doctors aren't allowed to do mass advertising in India his rep had to be built almost entirely of word of mouth.
According to my x-rays I've distracted about 2.5 cm where I've turned for 2.8 cm. Looks like it's caught up from the lag. I'm actually surprised that the total distraction is that close to how much I've turned as I was expecting a greater difference to still be present.

Quote from: Medium Drink Of Water on August 03, 2014, 03:14:48 PMGlad you're feeling a bit better due to the decreased turning. Taking breaks and/or turning less can work wonders with LL problems.
It's definitely helped. It's kind of amazing how big a difference an extra .25 mm of distraction per day makes in how well you feel.
Quote from: Wannabegiant on August 08, 2014, 03:26:18 AMMan i hope all goes well for you, I just have to say that in hindsight maybe you should consider the plating option, maybe you can do it with Shah later if you change your mind.
Because exfix only takes an absolutely insane ammount of time, thats part of the reason why i didnt want to do more than 4.3 cm. At 5.5 cm lengthening, it could end up taking 8 -10 months in frames i think. Its very very hard mentally, especially if you want to keep it hidden from all your friends.
During my most recent visit with Dr Parihar I brought up plating and he again expressed an unfavorable opinion of bilateral plate fixation. He said you could do it in young children and on one leg for injuries, but he's really against doing it bilaterally in adults and doesn't think you'd heal well with it. Although Dr Shah would do it I don't think I'd be comfortable having a separate doctor work on my legs that another doctor did surgery on first if my healing is going smoothly.
I think I can manage the frame time. Dr Parihar is expecting around 9 months total. Judging from how long I've been alone in India I could probably pull off some more months of being hidden from friends until I get these frames off.
Quote from: mediocre on August 08, 2014, 04:53:52 AMJust make sure you take that after meals because it can cause gastric ulcers.
Also long-term intake of NSAID is related to heart attack and stroke.
Opioids on the other hand can cause dizziness and potentially addictive
But of course if the pain is there, no choice but to take these meds.
Yeah I'm done with the NSAIDS after those 8 days. Risking bad regenerate would worry me too much so I'll stick with the Ultracet even though it's not as effective.
Quote from: exclide on August 08, 2014, 07:35:22 AMThat's only if you have s**tty consolidation rate. At Ilizarovs centre the number they give is 2 month for 5cm and 1 month extra for every 1cm over, and that's standart cons rate. I've lengthened 8cm on femur, and my doc told me I can take the frames off in a month, but I'll probably give it 2 months just to be safe.
sounds confusing, 2 months for 5 cm?? you mean after the lengthening period is done i guess? So 5 cm might take 2.5 or 3 months to lengthen, and then 2 extra months?
Doesnt sound like an average time frame since most doctors say 1.5-2 months per cm is average. That would mean 7,5 months total for 5 cm would be lower end on the average.
Femur is different and i dont know when you started lengthening the femur so i wont get into that.
Quote from: Wannabegiant on August 08, 2014, 12:11:14 PMsounds confusing, 2 months for 5 cm?? you mean after the lengthening period is done i guess? So 5 cm might take 2.5 or 3 months to lengthen, and then 2 extra months?
Doesnt sound like an average time frame since most doctors say 1.5-2 months per cm is average. That would mean 7,5 months total for 5 cm would be lower end on the average.
Femur is different and i dont know when you started lengthening the femur so i wont get into that.
He's not that wrong, you need 30-40 days per cm (starting at the day of your operation) for the bone to be consolidated enough for weight bearing. You will likely get the frames taken of before the bone is fully consolidated but consolidated enough for weight bearing.
Quote from: 123 on August 08, 2014, 02:11:44 PMHe's not that wrong, you need 30-40 days per cm (starting at the day of your operation) for the bone to be consolidated enough for weight bearing. You will likely get the frames taken of before the bone is fully consolidated but consolidated enough for weight bearing.
ah okey, i guess some doctors are more conservative and want to avoid the risk of the bone bending, so they dont allow you to remove the frame until it is fully consolidated..(at least it seems to be the case with Bagirovs clinic).
Maybe just maybe i will be done at the end of this month when i take my next x-rays.. at that point i will have worn the frames for 6 months and i did 4.3 cm...
Maybe they can give me some cast or braces for my legs if i remove them a little earlier than expected..
Quote from: Wannabegiant on August 08, 2014, 02:16:36 PMah okey, i guess some doctors are more conservative and want to avoid the risk of the bone bending, so they dont allow you to remove the frame until it is fully consolidated..(at least it seems to be the case with Bagirovs clinic).
Maybe just maybe i will be done at the end of this month when i take my next x-rays.. at that point i will have worn the frames for 6 months and i did 4.3 cm...
Maybe they can give me some cast or braces for my legs if i remove them a little earlier than expected..
Yeah, after frame removal you have to wear a cast for a 1-2 weeks until you are good to go. Btw you should use more supplements, maybe you can accelerate your consolidation. Take vitamin D, protein shakes with all the amino-acids, and something called Ossopan (google it). Also try cacao powders which contain all the vitamins and minerals, they surely have those in russia.
Quote from: 123 on August 08, 2014, 04:17:16 PMYeah, after frame removal you have to wear a cast for a 1-2 weeks until you are good to go. Btw you should use more supplements, maybe you can accelerate your consolidation. Take vitamin D, protein shakes with all the amino-acids, and something called Ossopan (google it). Also try cacao powders which contain all the vitamins and minerals, they surely have those in russia.
Okey yeah it would feel safer walking with the cast after frame removal so thats good.
I have been taking vitamin D and calcium supplements every day since the surgery day. I also took zink for a while and another supplement called Ostegenon (i guess this is similar to ossopan), which is some kind of russian brand supplement for bone regen, i still take that one although i ran out temporarily, so for 2 months of the whole thing i didnt take it, but i bought more.
I also take protein shakes although i started quite late with it, but before that i ate yoghurt with extra protein ever morning
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