One Step Closer - External tibias, femurs, humerus - Petersburg, Russia

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Quote from: Dozer on June 12, 2015, 11:02:13 AMYou still have 40 degrees after frame removal. And yes you have to do PT every day to increase your ROM, it won't magically improve by itself. Though I did it pretty casually, like no more than a hour per day. Shouldn't be big of a deal once you reach 90 degrees, so you can sit comfortably at least.

How long did you take to move from 40 degrees to 90 degrees ? you can bend now 180, isn't that ?

by the way, how many cm you did in your femur and how long time you had the frame on the femur ?

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i emailed solomin, after 2 emails he told me to email Dr. Pavel Kulesh, I haven't recieved an e mail from him after contacting him.

just thought i'd let people know how i got on in case others were thinking of doing LL there.

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Quote from: alex on June 16, 2015, 11:00:49 AMHow long did you take to move from 40 degrees to 90 degrees ? you can bend now 180, isn't that ?

by the way, how many cm you did in your femur and how long time you had the frame on the femur ?
A month and a half or so. I lengthened 7.5 cm and I had the frame for 9.5 months.


Quotejust thought i'd let people know how i got on in case others were thinking of doing LL there.They do their filtering too. Kulesh usually responds to mails within a day.

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Quote from: Dozer on June 16, 2015, 11:38:35 AMA month and a half or so. I lengthened 7.5 cm and I had the frame for 9.5 months.

I thought 7.5 cm wouldn't take more than 8 monthes in femur as they heal fast than tibia.

after removing the deveice from femur, did you had any problem with your back as duck ass and so ?

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Quote from: alex on June 16, 2015, 01:03:29 PMI thought 7.5 cm wouldn't take more than 8 monthes in femur as they heal fast than tibia.

after removing the deveice from femur, did you had any problem with your back as duck ass and so ?
Duckass disappears shortly after distraction is complete. With enough standing.

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How long do you think it would take to cross lengthen tibaie and femurs by 4CM each using LON?

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Quote from: Taller on June 17, 2015, 04:09:34 PMHow long do you think it would take to cross lengthen tibaie and femurs by 4CM each using LON?
LON on both tibia and femur? Well, around 50 days to lengthen 4 cm and remove the external fixators and then repeat in a month or so? So around 130 days before you'll remove all the externals. And then few months extra before you can actually walk unaided.

I'd get bilateral external-only tibias and at the same time install 1 LON femur, lengthen, remove the femur fixator and install another LON femur shortly after. 4 cm shouldn't take too long to consolidate and external tibs are usually tolerated well.

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I got a response from him, he sais if i choose MEDEM Clinic they all speak english! maybe that is a department in the Petersburg hostpital?, he says if i choose St Elizabeth Hospital I will need to have a transaltor app on my phone to communicate with people.

dozer do you know any information about this, if there is a place nearby where staff speak english, it would be most adventageous for us to know.

Dozer are you saying it would noly be 5 months with frames on for LON 8cm.

are you also saying the best option would be eixternal tibs, and while lengthening that you lengthen one femur, is that not a bad recomendation, i thought you could only lengthen 2x legs at one time.

if you can adhvise id like to know total time until frame removal of 4cm for tib and femur total 8cm, using which ever method is best for time.

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Do you plan to do anything about your pinsite scars after lengthening?

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Quote from: microman on June 17, 2015, 09:22:34 PMI got a response from him, he sais if i choose MEDEM Clinic they all speak english! maybe that is a department in the Petersburg hostpital?, he says if i choose St Elizabeth Hospital I will need to have a transaltor app on my phone to communicate with people.

dozer do you know any information about this, if there is a place nearby where staff speak english, it would be most adventageous for us to know.

Dozer are you saying it would noly be 5 months with frames on for LON 8cm.

are you also saying the best option would be eixternal tibs, and while lengthening that you lengthen one femur, is that not a bad recomendation, i thought you could only lengthen 2x legs at one time.

if you can adhvise id like to know total time until frame removal of 4cm for tib and femur total 8cm, using which ever method is best for time.
MEDEM clinic is a fancy commercial clinic, St. Elizabeth Hospital is a government hospital. Staying in MEDEM is very expensive, like 200$/day or so, the surgery will also be more expensive.

You should be fine with google translator though. I think... May be... Yeah...

Also, you're asking me a lot of questions regarding the time you need to lengthen 'x' centimeters. Keep in mind, that I can't tell you that, as every case is unique and I can't know your bone healing capabilities. And when I say "I'd get" I actually don't give a recommendation, it's just what I personally would do, but to me that's a different thing. I know that I could tolerate more than what I have right now and you can't know that. Like I said, keep your goals realistic and try to not overload yourself.

Quote total time until frame removal of 4cm for tib and femur total 8cm, using which ever method is best for time.External-only bilateral tibias 50 days distraction for 4 cm and approx 7 months overall until frame removal.

LON femurs after you've finished lengthening tibias (50 days) to ease the process for yourself, 3 months each for 8cm, about 6-7 months total.

So that's 50 days + 7 months, around 9 months, if everything goes cool. I don't recommend going that route though, as it'll be very difficult. External femurs are very hard to tolerate, let alone lengthening back to back with tibias and also having 3 externals at the same time.


QuoteDo you plan to do anything about your pinsite scars after lengthening?May be. Scar revision is probably not the worst idea after lengthening so much with external devices. I hope I can walk in and YOLO all the scars at the same time, so I don't have to waste much time on it.