People who died after LL

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There's no proof that MasterHY died, but this scares me honestly... How come that he had a FOURTH surgery?

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There is no final proof that he died, however there is no reason to believe he is still alive either. As already mentioned i was in contact with him and there was no reason for him to stop answering me. He wanted to sue Betz and i promised to help him.
In his 4th surgery he got his 4th nail plus a bone graft for his left leg. The bone was taken from his hip. It was a big surgery because they had to fill a 10cm gap. He wrote to me :“ I am recovering from the surgery, it was pretty intense, I had a lot of pain and my leg seemed to be reacting a bit strange to the bone graft.  I also have a lot of discomfort in the hip area where the bone graft was done, and I think it will be awhile before get somewhere with all of this.” 

There was much more in his email. Shortly afterwards he stopped replying to me. That was in May 2015. So i'm quite convinced he died.

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Quote from: hanshi on November 06, 2016, 07:56:02 AMThere is no final proof that he died, however there is no reason to believe he is still alive either. As already mentioned i was in contact with him and there was no reason for him to stop answering me. He wanted to sue Betz and i promised to help him.
In his 4th surgery he got his 4th nail plus a bone graft for his left leg. The bone was taken from his hip. It was a big surgery because they had to fill a 10cm gap. He wrote to me :“ I am recovering from the surgery, it was pretty intense, I had a lot of pain and my leg seemed to be reacting a bit strange to the bone graft.  I also have a lot of discomfort in the hip area where the bone graft was done, and I think it will be awhile before get somewhere with all of this.”

There was much more in his email. Shortly afterwards he stopped replying to me. That was in May 2015. So i'm quite convinced he died.

Show us the email

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All these stories! your friends are dying! not abstract individuals but real people you met- this scares me a lot

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The posts on this forum keep on getting more ridiculous as each day passes.

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If masterHY lost access to the email he was replying in he could have still made a account on old forum  or here saying his still alive

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It seemed he had just very rough experiences with his multiple surgeries and he could of just stopped replying because he wants to leave it all behind him. It's possible he died but it's also possible he just wants to be left alone and wants to forget all about limb lengthening, hence not being active on this forum or replying to emails.

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I can understand he doesnt post in the forum but I think he wouldnt stop relying to his friends unless something serious happened

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Quote from: hanshi on November 06, 2016, 07:56:02 AMThere is no final proof that he died, however there is no reason to believe he is still alive either. As already mentioned i was in contact with him and there was no reason for him to stop answering me. He wanted to sue Betz and i promised to help him.
In his 4th surgery he got his 4th nail plus a bone graft for his left leg. The bone was taken from his hip. It was a big surgery because they had to fill a 10cm gap. He wrote to me :“ I am recovering from the surgery, it was pretty intense, I had a lot of pain and my leg seemed to be reacting a bit strange to the bone graft.  I also have a lot of discomfort in the hip area where the bone graft was done, and I think it will be awhile before get somewhere with all of this.”

There was much more in his email. Shortly afterwards he stopped replying to me. That was in May 2015. So i'm quite convinced he died.

That'd make 5 confirmed deaths stemming from CLL that I know about.

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I know a girl in Barcelona also died (Achondroplasia).

There is also one guy who committed suicide.