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Posted on May 18, 2018, 10:30 am
#21

Quote from: Android on May 18, 2018, 05:02:49 AMMore comprehensive article.

He died in 2016 from pulmonary embolism (PE), a blood clot in the lung. The hospital claims that post-surgery exercise, which can help prevent PE, was prescribed after surgery. However, CCTV footage shows no exercise being administered, and the caregiver has said that they didn't help him exercise.

He later felt his heart racing and experienced chest pain, so paramedics were called to transfer him to another hospital better suited for his complication. The hospital claims that the paramedics arrived in two minutes, meanwhile actual CCTV footage showed that they arrived in 22 minutes.

The case is being discussed now since there still isn't closure, as the hospital has denied wrongdoing, not having apologized to the family.


Thanks, Android. As helpful as always.

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Posted on May 18, 2018, 12:13 pm
#22

Quote from: lemonade311 on May 18, 2018, 09:54:04 AMWas he not prescribed blood thinning medication? I know Dr. Paley prescribes this probably to prevent these kinds of blood clots.

Not only Paley. Every serious doctor. I was given that medication till1 month after LL and till 1 month after at shortening and right tibia malunion correction.
Both surgeries frof different doctors.

So that kind of medication is very important and is given everywhere in the world from all respectable doctors.

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Posted on May 18, 2018, 7:02 pm
#23

Blood thinning meds are very important and only bad doctors forgive to give them. In my case I got them but a friend of mine didn't.

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Posted on May 19, 2018, 11:36 pm
#24

There are other cases

http://www.limblengtheningforum.com/index.php?topic=3922.0

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Posted on May 22, 2018, 3:13 pm
#25

Quote from: Android on May 18, 2018, 05:02:49 AMMore comprehensive article.

He died in 2016 from pulmonary embolism (PE), a blood clot in the lung. The hospital claims that post-surgery exercise, which can help prevent PE, was prescribed after surgery. However, CCTV footage shows no exercise being administered, and the caregiver has said that they didn't help him exercise.

He later felt his heart racing and experienced chest pain, so paramedics were called to transfer him to another hospital better suited for his complication. The hospital claims that the paramedics arrived in two minutes, meanwhile actual CCTV footage showed that they arrived in 22 minutes.

The case is being discussed now since there still isn't closure, as the hospital has denied wrongdoing, not having apologized to the family.


I remembered this from the paper where Catagni describes he had one dwarf patient die during his years in Lecco.

https://www.researchgate.net/publication/225890120_Strategia_nel_trattamento_chirurgico_degli_acondroplasici_tecniche_applicate_nel_Dipartimento_di_Ortopedia_e_Traumatologia_dell'Ospedale_di_Lecco

Quote The complications were classified as minor, moderate, and severe. Minor complications were those which required only modification of the apparatus during treatment. Twenty-three percent of the lengthenings required some modification of the device during treatment. Moderate complications were those which required additional procedures during lengthening. Forty-two percent of patients fell into this category. Finally, severe complications were those which required another surgery following treatment or had lasting sequelae of the treatment. Twenty-one percent of patients fell into this category. The most common complication was equinus contractures of the ankle which required treatment by tendoachilles lengthening. Two pulmonary emboli were sustained following percutaneous tendo-achilles lengthening. One patient died as a result of this complication. Despite the significant complication rate, we feel that the handicap due to short stature suffered by patients with dwarfing conditions warrants continued treatment using the Ilizarov technique.


The cause of death was also PE.

And another reason why ATL seems like a very bad idea. "Ballerina foot" (equinus contracture) shouldn't be enough of a reason to do another invasive procedure like that, I think. I recall reading here that you can treat BF/EQ with physiotherapy without ATL, but I'm not 100% sure. I'll have to look up some papers.

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Posted on May 22, 2018, 3:32 pm
#26

Quote from: Android on May 18, 2018, 05:02:49 AMMore comprehensive article.

He died in 2016 from pulmonary embolism (PE), a blood clot in the lung. The hospital claims that post-surgery exercise, which can help prevent PE, was prescribed after surgery. However, CCTV footage shows no exercise being administered, and the caregiver has said that they didn't help him exercise.

He later felt his heart racing and experienced chest pain, so paramedics were called to transfer him to another hospital better suited for his complication. The hospital claims that the paramedics arrived in two minutes, meanwhile actual CCTV footage showed that they arrived in 22 minutes.

The case is being discussed now since there still isn't closure, as the hospital has denied wrongdoing, not having apologized to the family.


From Android's second link, for the lazy:

Medical history


You're at higher risk if you or any of your family members have had venous blood clots or pulmonary embolism in the past. This may be due to inherited disorders that affect blood, making it more prone to clot.

In addition, some medical conditions and treatments put you at risk, such as:

  • Heart disease. Cardiovascular disease, specifically heart failure, makes clot formation more likely.
  • Cancer. Certain cancers — especially pancreatic, ovarian and lung cancers, and many cancers with metastasis — can increase levels of substances that help blood clot, and chemotherapy further increases the risk. Women with a personal or family history of breast cancer who are taking tamoxifen or raloxifene also are at higher risk of blood clots.
  • Surgery. Surgery is one of the leading causes of problem blood clots. For this reason, medication to prevent clots may be given before and after major surgery such as joint replacement.


Prolonged immobility

Blood clots are more likely to form during periods of inactivity, such as:

  • Bed rest. Being confined to bed for an extended period after surgery, a heart attack, leg fracture, trauma or any serious illness makes you more vulnerable to blood clots. When the lower extremities are horizontal for long periods, the flow of venous blood slows and blood can pool in the legs.
  • Long trips. Sitting in a cramped position during lengthy plane or car trips slows blood flow in the legs, which contributes to the formation of clots.


Other risk factors
   

  • Smoking. For reasons that aren't well-understood, tobacco use predisposes some people to blood clot formation, especially when combined with other risk factors.
  • Being overweight. Excess weight increases the risk of blood clots — particularly in women who smoke or have high blood pressure.
  • Supplemental estrogen. The estrogen in birth control pills and in hormone replacement therapy can increase clotting factors in your blood, especially if you smoke or are overweight.
  • Pregnancy. The weight of the baby pressing on veins in the pelvis can slow blood return from the legs. Clots are more likely to form when blood slows or pools.


Prevention


Preventing clots in the deep veins in your legs (deep vein thrombosis) will help prevent pulmonary embolism. For this reason, most hospitals are aggressive about taking measures to prevent blood clots, including:

  • Blood thinners (anticoagulants). These medications are often given to people at risk of clots before and after an operation — as well as to people admitted to the hospital with a heart attack, stroke or complications of cancer.
  • Compression stockings. Compression stockings steadily squeeze your legs, helping your veins and leg muscles move blood more efficiently. They offer a safe, simple and inexpensive way to keep blood from stagnating during and after general surgery.
  • Leg elevation. Elevating your legs when possible and during the night also can be very effective. Raise the bottom of your bed 4 to 6 inches with blocks or books.
  • Physical activity. Moving as soon as possible after surgery can help prevent pulmonary embolism and hasten recovery overall. This is one of the main reasons your nurse may push you to get up, even on your day of surgery, and walk despite pain at the site of your surgical incision.
  • Pneumatic compression. This treatment uses thigh-high or calf-high cuffs that automatically inflate with air and deflate every few minutes to massage and squeeze the veins in your legs and improve blood flow.
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