Cyborg, I am sure you have heard of Sysop/Apotheosis. He is actually active on Instagram. His name there is shahnhulk. Me and 3 people I know have all had a good conversation with him regarding limb lengthening. I am sure you could reach out to him no?
Hi Victor.
No content ideas here, just wanted to say thank you for creating CLL videos and being a positive contribution to the community.
Quote from: cyborg4life on May 09, 2022, 08:23:18 PM@interested_2022 - to be honest I think they have removed the original Stryde nail but that doesn't mean they can't make the 2.0 better. Haha you caught that little Easter egg huh. Yeah I may have bumped into an interesting company who is dabbling with LL tech...time will tell
Hi Cyborg, thanks for these infos. So you've heard Stryde is being shelved completely?! Or do you know if there actually is a 2.0 in the works?
Fantastic content as always Victor, you're part of the reason I feel so much more comfortable with LL now than I did when I first heard about it a few years ago.
Quote from: cyborg4life on May 05, 2022, 08:26:55 PMHey everyone so in a few min we’ll have on several members of Paley’s Physical Therapy team for a LIVE Q&A. You can catch that here:
Next week we’ll have a patient progress follow-up with Leon, Optimus, hopefully HJ and possibly another one or two patients to see how they're doing. Week after hoping to have another patient currently lengthening.
Finally, I’m open to new content ideas so if you have any suggestions feel free to email them to me at [email protected] or in this thread I’ll try to drop back occasionally. One thing I’m thinking of doing is the patient-ranked LL clinics - like the 2022 LL surgeon/clinic awards or something like that. Just need to figure out what categories will be rated etc.
Could you make a video about how to be comfortable / decrease the chance of falling down during LL? Such as for internals
@Shogun - I believe someone sent me a video of him after his lengthening way back. Didn't he do some crazy amount of length though? If so, I have to be careful with showcasing things like that bc even though he might've recovered others might not and I don't want to portray the wrong idea. We'll see...
@JamesBrown - Thanks I appreciate it! Just want to provide patients with as much LL info as I can.
@prospect - Let's just say something is in the works. Dr. Paley said he wanted me to wait for him to update you. Stay tuned
@Oswego - Thank you! Glad the content has been a helpful resource.
@SpeedDialer - I know the best way to do that is to take your time when moving. There's no rush. Use wheelchair, walker, shower chair, elevated toilet seat, learn the proper seat-to-bed-to-wheelchair-to-walker transfers, improve upper body and core strength for easier pivoting and get a caretaker for harder tasks (shopping, taking out trash, washing dishes, washing laundry etc. you get the idea) and you'll be good!
By the way - here's a new video that I put together of Leon (a LON femur lengthening patient who did full 8cm) showing his 10month post-LL physical abilities (jump rope, jumping and sprinting). I'm very impressed!
Are you sure this Leon guy is legit? 8cm LON means turkey and sincerly, his femurs and especially femurs to tibias ratio don't look long at all. Even 6cm femurs you filmed had longish femurs....
Have you seen his scars?
Interview with Dr. Kulesh and Dr. Solomin
Yes he did 20-21cm.He doesn't look bad and you could easily reach out to him. He is very much active on Instagram. Also, he has done a music video in which he is singing. In YouTube you can search *Brooklyn Girls Rock*(hopefully i type brooklyn right) and you will find it. His YouTube channel name is sysop and he did his limb lengthening with Dr. Betz. He also did humerus lengthening.
I ask because I am also gonna be on the same boat. My goal is smaller though 14-15cm but humerus lengthening is interesting to me as well. Btw great content!!!
QuoteLet's just say something is in the works. Dr. Paley said he wanted me to wait for him to update you. Stay tuned
Please tell us, that it'll be a weight bearing nail! 
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