Quote from: V21 on August 30, 2021, 07:18:00 PMI will be 3 months because I want to leave after all is done, but you can be like 5-6 weeks I thing. And yes, bring the toilet seay with you... I didn't and I have a problem now. Bough it today and it turns out that it doesnt fit my toilet cause it is really weird on the borders. Right now I'm not sure I can stand from toilet without help, so if I need to do number 2 tomorrow my options are:
Risk sitting in toilet praying to be able to get up. If I cant I'm fked, cause I doubt my gf can lift me.
Ask to go to bathroom in the PT centre.
Do it in diapers or in a bucket
So who's cleaning you up when using diapers? No matter what I'm going through, I'd never put someone in that position to have to clean me after going in a diaper unless im elderly and ting myself through natural causes and can't help it.
5.5 Cm Femurs with Dr. Giotikas and G-Nail.
So I think he is joking and he can clean himself up if he isn't. His hands work and he can stand.
Quote from: LU213 on August 31, 2021, 05:11:22 AM So I think he is joking and he can clean himself up if he isn't. His hands work and he can stand.
lol.. I get the joke.. that would be so gross though if it happened..lol 😂
Quote from: V21 on August 30, 2021, 07:18:00 PMI will be 3 months because I want to leave after all is done, but you can be like 5-6 weeks I thing. And yes, bring the toilet seay with you... I didn't and I have a problem now. Bough it today and it turns out that it doesnt fit my toilet cause it is really weird on the borders. Right now I'm not sure I can stand from toilet without help, so if I need to do number 2 tomorrow my options are:
Risk sitting in toilet praying to be able to get up. If I cant I'm fked, cause I doubt my gf can lift me.
Ask to go to bathroom in the PT centre.
Do it in diapers or in a bucket
Are you able to bend your knees ok ? Did the nurse show you how to slide on/off your wheelchair to the toilet seat ? As long as you are able to use crutches and bend your knees a bit, you should be ok to use toilet - it's not as straight forward as when your legs are fully functional but doable. Ask the nurse to show you.
Quote from: eric.cartman on August 31, 2021, 10:15:31 AMAre you able to bend your knees ok ? Did the nurse show you how to slide on/off your wheelchair to the toilet seat ? As long as you are able to use crutches and bend your knees a bit, you should be ok to use toilet - it's not as straight forward as when your legs are fully functional but doable. Ask the nurse to show you.
Hey man, I have not used wheelchair, just walker and crutches. The guy who did tibia can sit with no problem, but it's very different for femur patients. It's hell for me, but I can do it¡ Just tried this afternoon and I already am strong enough to stand up from toilet by myself, so no diapers for now.
Important update.
Today I started PT and clicking. It has been a very good day. Regarding PT, it hurts a lot, but I love it lol, it feels like good pain. I must admit that hospital was very tough for me, but I love this kinda pain: in hospital was just vomiting and being unable to move, here it is like "warrior" pain. I enjoyed a lot, and I was trying to overcome my limits. Even the PT guy laughed and told me to rest more. We also biked, and we were told that Dr. Giotikas will give us a stationary bike to have at home.
Regardind clickinc, the first thing to say is that it is not painful, or not much. I have seen Betzbone patients talk about crying with pain, and it's nothing like this. The twist and the sound is gruesome, but the pain itself is not that bad. For me it was 1 on left leg and 3-4 on right leg. It's not easy though, and I had to call the nurse to get the proper movement.
I did have a scare. Whereas my left leg clicks easily in two movements, my right requires a crazy hard twist (the nurse was cringing) and, sometimes, the two steps movement is not needed. For those who dont know, one click is composed by two clicks: big click with big twist, and small reset click. Well, in the right, there are times when the small click happens at the same time I do the big click, which is not normal. I got really paranoid thinking that something was wrong with the nail. I can't have damaged it, I have been extremely careful. I contacted Dr. Giotikas and he told me that no X rays are needed and that it's normal and depends on my technique: as long as it clicks, it's ok. In fact, this also happens to the other G Nail patient and, when the nurse helps me do the click, it happens as it does in the left leg. Anyway, I will be nervous until I have X rays on 13th September.
thanks v21 for updating us. am considering G-Nail for my femur lengthening and I will follow your diary closely.
As for the clicking is it impossible to accidentally click when sleeping for example? I move a lot when I sleep not sure if I will still be able to do that post-op but I am worried about accidental clicks.
Quote from: canterk on August 31, 2021, 06:24:24 PMthanks v21 for updating us. am considering G-Nail for my femur lengthening and I will follow your diary closely.
As for the clicking is it impossible to accidentally click when sleeping for example? I move a lot when I sleep not sure if I will still be able to do that post-op but I am worried about accidental clicks.
No way to have accidental clicks while sleeping. The movement is so hard to do. This doesnt mean that accidental clicks cant happen and I had 1 in hospital. However, they do happen only in really extreme situations: in my case, an idiot nurse did not lift me properly from toilet, and my left bent to the side, causing a click. I will make a thread about accidental clicks after finishing, but for now I'd say they can happen in some situations but they are really weird. No way to click while sleeping or being in bed. In fact, tonight clicking was quite hard in my right leg, you must find the angle and it took me 30 minutes (left leg only 5). Imagine doing that while sleeping... can't see how. And if you have accidental clicks, you will notice, it sounds like a gunshot lol.
Thanks for the warning about how loud it sounds. 
. I was expecting something like the clicking sound you make with your tongue.
Quote from: V21 on August 31, 2021, 04:09:00 PMImportant update.
Today I started PT and clicking. It has been a very good day. Regarding PT, it hurts a lot, but I love it lol, it feels like good pain. I must admit that hospital was very tough for me, but I love this kinda pain: in hospital was just vomiting and being unable to move, here it is like "warrior" pain. I enjoyed a lot, and I was trying to overcome my limits. Even the PT guy laughed and told me to rest more. We also biked, and we were told that Dr. Giotikas will give us a stationary bike to have at home.
Regardind clickinc, the first thing to say is that it is not painful, or not much. I have seen Betzbone patients talk about crying with pain, and it's nothing like this. The twist and the sound is gruesome, but the pain itself is not that bad. For me it was 1 on left leg and 3-4 on right leg. It's not easy though, and I had to call the nurse to get the proper movement.
I did have a scare. Whereas my left leg clicks easily in two movements, my right requires a crazy hard twist (the nurse was cringing) and, sometimes, the two steps movement is not needed. For those who dont know, one click is composed by two clicks: big click with big twist, and small reset click. Well, in the right, there are times when the small click happens at the same time I do the big click, which is not normal. I got really paranoid thinking that something was wrong with the nail. I can't have damaged it, I have been extremely careful. I contacted Dr. Giotikas and he told me that no X rays are needed and that it's normal and depends on my technique: as long as it clicks, it's ok. In fact, this also happens to the other G Nail patient and, when the nurse helps me do the click, it happens as it does in the left leg. Anyway, I will be nervous until I have X rays on 13th September.
Regarding your right leg - every nail needs the same amount of twisting and that should never be more than 20-30 degrees. If you have to twist your leg very far then you very likely have not relaxed your leg. Make absolutely sure that you leg is fully relaxed, i.e. just hanging in your hand, and then guide the click with your hands. It is normal to need a week or two to learn to click properly, i.e. initiate the rotation immediately.
Having said that I can't explain why the reset click happens at the same time as the first click. Also, for us the clicking sound is quite subtle 
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