Hi TRS, yes I have the patch, and synaleve, and the muscle relaxant, and Lyrica. They just stopped oxynorm, which was what caused me the huge withdrawal I had the other day.
However for some reason in my family we have this weird immunity to paracetamol, which means it does absolutely no effect on us normally. So 800mg of paracetamol that are in the synaleve pills are just for nothing I believe. I take them because of the other ingredients.
I'm about 5 weeks after surgery and still have lots of pain, I wish I could say like other LLers that I have no pain after the 1st month until reaching something like 6-7cm. It looks like it's gonna be painful all the way long. So either it's not true that between 3 and 6cm you have no pain, or I just have bad luck. The new rate of 4x0,25mm is much more bearable though.
And TIBIKE2000, I hope the same.
Bilateral femurs with PRECICE 2. Dr Franz BIRKHOLTZ. South Africa. Feb 2016
I had muy consultation with dr B today. The xrays show an increment of about 3,1cm. The good news is that my bone consolidation seems to be extremely fast, which is really good for long term recovery. The bad news is that my muscles are having a hard time catching up with the lengthening rate and I've lost a lot of flexibility.
Because bone growth is so fast dr B explained me that we may need to increase again the distraction rate, otherwise the bone will consolidate too soon. The problem is that I will need to recover muy flexibility extremely fast, otherwise we may need to stop lengthening because it's too much for my muscles (or too fast).
For now I'm stopping taking the calcium and we keep 0.25x4. I've been stretching literally the whole day. I hope I don't have too finish this before I expected. Even with +8cm I would still be short, but going through all this to still being super short... That's another thing. I hope muy body can handle a reasonable amount before stopping.
It's not a happy day, but I wanted to share it for future LLers, so you can know that this happens
Oh and regarding the thing of saying that dr B is exposing me to unnecessary damage because of the lengthening rate (as TIBIKE200 said). It's not actually him but my bone growth that dictates this. He is actually super concerned about safety and told me straight away we might need to stop before (which I'll do whatever is on my hands to avoid)
Quote from: toafrica on March 22, 2016, 06:16:05 PMI had muy consultation with dr B today. The xrays show an increment of about 3,1cm. The good news is that my bone consolidation seems to be extremely fast, which is really good for long term recovery. The bad news is that my muscles are having a hard time catching up with the lengthening rate and I've lost a lot of flexibility.
Because bone growth is so fast dr B explained me that we may need to increase again the distraction rate, otherwise the bone will consolidate too soon. The problem is that I will need to recover muy flexibility extremely fast, otherwise we may need to stop lengthening because it's too much for my muscles (or too fast).
For now I'm stopping taking the calcium and we keep 0.25x4. I've been stretching literally the whole day. I hope I don't have too finish this before I expected. Even with +8cm I would still be short, but going through all this to still being super short... That's another thing. I hope muy body can handle a reasonable amount before stopping.
It's not a happy day, but I wanted to share it for future LLers, so you can know that this crap happens
Oh and regarding the thing of saying that dr B is exposing me to unnecessary damage because of the lengthening rate (as TIBIKE200 said). It's not actually him but my bone growth that dictates this. He is actually super concerned about safety and told me straight away we might need to stop before (which I'll do whatever is on my hands to avoid)
Isnt there a way to slow the consolidation? Like even smoking?
Well... I could try smoking, I didn't propose it to the dr, I have history of asthma though. But no, so far I don't know of any way. I'll see him next week and let's see what's up
Sorry to hear your troubles.This is kinda intresting actually,if you try faster lengthening rate it may cause some problems later and if you slow it down you are consolidating super fast..I hope you can achieve your goal.
Great diary btw.Keep us updated:)
Quote from: toafrica on March 22, 2016, 08:54:27 PMWell... I could try smoking, I didn't propose it to the dr, I have history of asthma though. But no, so far I don't know of any way. I'll see him next week and let's see what's up
Is it possible to do another osteotomy in the event that your bones consolidate early? Guichet suggested it in the past, and IamReady said that if his tibias would consolidate with precise, he would come back a year later to "re-break" his legs to max out his nails..... just wondering
do as much PT as you possibly can. like hours of stretching and as much stationary bike your dr says is safe per day. hopefully that will help.
sorry to hear about the pre-consolidation issues, but like you said it'll be much better for your long term recovery and it's an infinitely better problem to have than the opposite (delayed or non-unions)
How's everything going?
Hi there, thanks for the interest. I update again, we have 4 non smirking days in a row here so I'll be at home during the whole time without physio or anything. Nothing we can do so I'll try to do my best on my own.
Pain has almost disappear. You feel the typical soreness here and there depending on how you move or what muscles work. Could be because of the pain medication, although I'm not taking much, much less than before. The only time you can really say is too painful is at physio and in the morning after the whole night without moving (yes, now I can sleep 6-8h without waking up to take painkillers). The pain is like if someone hit your legs with a bat the whole night and then you wake up. Fortunately it lasts just 1 or 2h.
Regarding my flexibility, I've recovered quite a lot this week. Physio it's been super intense and now I feel much more flexible. I also stretch by myself a lot, but normally after physio my muscles are so sore (like if you workout one muscle for 3h), that I can't stretch intensely. But I try to stop gentle stretchings most of the time to keep it going. The only thing that bothers me is a sharp pain like a knife in my right knee that completely blocks it to go to full extension. I can do it after warming up and going slowly, but when it gets cold again it comes back. Looks like some muscle tearing due to overstretching ot something like that, it's going better, but it's pretty annoying.
One thing that's been awesome, following dr B recommendations, it's been a warm bath. I took one today for about 1h doing nothing, just relaxing, and my muscles got relaxed to a point I haven't seen in a long time. Right after I could stretch them a lot more. Although later o.k. they came back to the normal tightness, I think that if I do that regularly it can help a lot (although going in and out the bath it's deeper complicated in this condition).
Peaceout. Thanks for the wishes, dr B told me he would see me next week. I believe he wants to speed up again to avoid consolidation. I'll keep you posted
Ouroboros. I guess so. Last consultation dr B seemed pretty busy, it was by far the day when he's been the least talkative. I think he was pretty stressed. So his answers were basically there's nothing to do, we spped up or it will stop before we wanted. I'll ask him next time of I have the chance. He didn't really give me alternative options that day, let's see
Goldenegg. Thanks for your words. Yes it's definitely better to have a strong bone for the long term that the opposite. I just hope we can lengthen faster than it heals. As you said I'm doing as much PT as I can (although now we have lots of holidays). I do bike but I try to don't do much, because my muscles get quite tight after that exercise and it's more difficult to lengthen afterwards. We have to be careful to no overstretch or damage the muscles, at the same time that we stretch them as much as possible. If you get muscle tearing or contracture cause you went too fast, you'll lose a lot of time recovering it.
Nightwish. I hope the update answers your question 
Btw I'm having a lot of problems with my laptop since last week (all related to windows). If there's an IT guy around here, please comment or send me a PM, I just don't know how to fix this thing before it breaks completely
Glad the flexibility is returning. Wouldn't say I'm a computer whiz!, but what's the problem with your laptop?
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