Quote from: Franz on March 09, 2014, 05:24:51 PM
The cutoff of 165 is a general rule. There may be exceptional circumstances where this rule can be relaxed. This is best discussed on a one-to-one basis.
I was 171cm and am recovering from femur surgery and am now 176.5 cm. I don't have any exceptional circumstances other than wanting all the benefits that come with being average height and up and am far over the cutoff, so I doubt I would be a candidate.
What sort of circumstances would constitute being exceptional?
Quote from: amatan on March 20, 2014, 07:00:21 AMI was 171cm and am recovering from femur surgery and am now 176.5 cm. I don't have any exceptional circumstances other than wanting all the benefits that come with being average height and up and am far over the cutoff, so I doubt I would be a candidate.
What sort of circumstances would constitute being exceptional?
The most important thing is that the patient should understand what theyre letting themselves into. For this reason I think you may qualify.
What is the minimum stay will you require to stay for femur. Most of us are working professional and will be impossible to take off 75-90 days. Is it possible to return home after 30 days and lengthen rest at home?
Quote from: Cooper on March 20, 2014, 03:08:16 PMWhat is the minimum stay will you require to stay for femur. Most of us are working professional and will be impossible to take off 75-90 days. Is it possible to return home after 30 days and lengthen rest at home?
Good question. It would be cheaper and easier to spend only 4-6 weeks, BUT you would lose out on the meticulous monitoring and daily physio by an experienced team. The problem is if things start going pear shaped, you would want to be close to the doctor who performed the op.
The calculation is as follows: 2 days pre-op. 5 days in hospital. 5-7 days before distraction. Ie 14 days until distraction starts. Then at least another 3-4 weeks to establish a physio routine and also pass through the biggest risk phase for thrombosis. So reluctantly, a minimum of 6 weeks. Provided you can get Ellipse to lend you an ERC unit to perform adjustments. You will also need to send me pictures of your range of motion hip knee and ankle weekly. You will need to send me xrays every two weeks.
So in theory it is possible although not advised.
Quote from: amatan on March 20, 2014, 07:00:21 AMI was 171cm and am recovering from femur surgery and am now 176.5 cm. I don't have any exceptional circumstances other than wanting all the benefits that come with being average height and up and am far over the cutoff, so I doubt I would be a candidate.
What sort of circumstances would constitute being exceptional?
176.5cm / 5'9.5 is exactly average in the US for all males. Are you in a different country?
Man, I'm trying to get from just about 165 to 170. 176 would be my goal after a second if I get through my first successfully.
Dr B would you stop a patient from lengthening any further than 5-6 cm or let them continue at their own risk?
Assuming they don't have any problems during the lengthening period.
Quote from: Franz on March 20, 2014, 08:12:10 PMYou will need to send me xrays every two weeks.
So in theory it is possible although not advised.
Dr. Franz,
You are awesome doctor. It will be my stupidity not to be your CLL patient. Can you please check on ERC device? I think it will be OK because patient in US are allowed to take it home.
It appears I might be your first patient unless someone beats me 
. I am looking forward to come in end of May.
Cheers!!!
Quote from: theuprising on March 20, 2014, 08:50:46 PMDr B would you stop a patient from lengthening any further than 5-6 cm or let them continue at their own risk?
Assuming they don't have any problems during the lengthening period.
In my mind there is no such thing as patients own risk. In terms of safety, it is my responsibility to make the decisions, as I am the professional in this case. Sorry if this sounds paternalistic, but I need to sleep at night!
Having said this, if we reach 5cm and everything seems good, we may together decide to continue. Do not bargain on this, though.
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