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Posted on May 30, 2018, 3:32 pm
#31

Quote from: warrior on May 30, 2018, 03:04:46 PMI do not agree on what you say, the intervention to the Achilles tendon is necessary after 3 - 4 cm because this tendon does not naturally extend too much, so if you do a stretch of 5-6-7-8 cm of tibia you will remain on tiptoe, the intervention consists in thinning the tendon in order to make it more elastic.

You dont have any idea what atl is.
They dont just thin your tendon.
They cut it in a z cut and they reattach both of its edges to a new length which most of the time is longer at least 3cm. All the inside gap is filled with scar tissue which is comoletely unelastic and more weak than real tendon. This will be your new "tendon"
Also, except from scar tissue, the new length leads to permanent and major deficits in power and tension which means that your balance will be way off and your push off power so reduced that even jumping and running will be almost impossible.
Thats what atl is, not just a thinner tendon but a thinner, longer tendon full of scar tissue which makes sokeus-gastrocnemius tension, the most important function of any muscle, completely off.

All doctors that perform atl obviously have no idea how catastrophic is otherwise they would have stopped doing it like all respectable doctors.
But that doesnt mean that the patient should suffer for the lack of knowledge the doctor has.

Also, tendon is very elastic that with walking and standing most patients will be completely ok without equinus up to 6-6.5 cm tibua lemgthening.
But even equinus is 1000 more preferable than almost useless legs that dont have the power for even everyday things.

It is my duty and all of patients that underwent atl to prevent other patients to even think about it.
But if you still do it then the responsibility for your condition will be completely yours.

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Posted on May 30, 2018, 3:43 pm
#32

Honestly I do not understand, why then do they want to do it?

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Posted on May 30, 2018, 3:52 pm
#33

ATL indeed is the hardest part of LL as my fellow patient's brother felt out of his experience under Dr catagni. But never the less, he is back to normal. He can jog/run/swim etc. The negativity is just due to bad experience under another doctor. I have not heard of a Pili/Catgni patient losing strength after ATL. Bodybuilder(No offense buddy _/\_) has asked this repeatedly on other Catagni/Pili patients' diaries but still isnt convienced even after they told him they are okay. It could again depend on how the surgery was performed. Even Parihar said he would do ATL in case of severe equinus.

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Posted on May 30, 2018, 3:57 pm
#34

Also its not mandatory. There are patients who have not had ATL too under Dr Pili. It kind of depends on how much you lengthen and your flexibility. Given a choice, if i reach my goal withbminor equinus, I would avoid it too. Why? Because of cost.

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Posted on May 30, 2018, 4:46 pm
#35

fivetenneeded2016 have you met patients of Pili that have done internal femur? If so how did it go for them?

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Posted on May 30, 2018, 4:51 pm
#36

Quote from: Shadow91 on May 30, 2018, 04:46:38 PMfivetenneeded2016 have you met patients of Pili that have done internal femur? If so how did it go for them?

I have not met any femur patients, my friend. But for femur, why dont you goto Betz/Guichet? If you ignore the outliers, majority have good results, if you go by data based on diaries here.

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Posted on May 30, 2018, 4:54 pm
#37

Quote from: Shadow91 on May 30, 2018, 04:46:38 PMfivetenneeded2016 have you met patients of Pili that have done internal femur? If so how did it go for them?

Besides I might not choose Dr Pili for femurs, if I plan for. I only opted them for the weight bearing tibial frames(I wanted pure external as I had a surgery on my knee earlier) and good results from the other diaries.

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Posted on May 30, 2018, 7:12 pm
#38

The thing is, Pili use Precise, which is much safer. Thats why i was thinking about him. But i am far from making a decision yet.

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Posted on May 30, 2018, 7:23 pm
#39

Quote from: Shadow91 on May 30, 2018, 07:12:03 PMThe thing is, Pili use Precise, which is much safer. Thats why i was thinking about him. But i am far from making a decision yet.

If you are going for precise go with Stryde. Trust me, weight bearing is the best thing if you want to get to normal living as soon as possible. First few days I walked very minimal, even then I lost my calm, it was just too frustrating. It then becomes a mental fatigue too if you are unable to do basic chores.

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Posted on May 30, 2018, 11:39 pm
#40

Quote from: fivetenneeded2016 on May 30, 2018, 03:52:37 PMATL indeed is the hardest part of LL as my fellow patient's brother felt out of his experience under Dr catagni. But never the less, he is back to normal. He can jog/run/swim etc. The negativity is just due to bad experience under another doctor. I have not heard of a Pili/Catgni patient losing strength after ATL. Bodybuilder(No offense buddy _/\_) has asked this repeatedly on other Catagni/Pili patients' diaries but still isnt convienced even after they told him they are okay. It could again depend on how the surgery was performed. Even Parihar said he would do ATL in case of severe equinus.


Be careful, FTN.

I recommend e-mailing as many CLL surgeons as you can if it ever comes the time that Pili suggests ATL. I'm telling you this because I've did the same... asking doctors about ATL. But do mention you're a current Pili/Catagni patient when you send those e-mails. Being no doctor, I can't give any other advice than that. Just never trust your own doctor blindly in the world of CLL.

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