Sounds a lot more and more like nerve injury from the original surgery and whatever went wrong with it are the primary underlying issue. How is your sensation to your skin on the leg? Is it the same as the other side? Have you gone for nerve conduction studies and/or EMG?
If Monegal operated to straighten your deformity, I would bet it is as straight as it is going to get. However, straightening the leg won't correct pre-existing nerve damage or muscle scarring. If your leg was severely atrophied and scarred, it could take years of physio to regain strength in it.
The next step for you is nerve conduction studies and EMG with a good neurologist/physiatrist to exactly determine how bad the nerve damage is or isn't.
In brief, do you have any idea how the nerve damage was done to the leg? I believe you had the frames off too soon and suffered a massive fracture/bend in the bone? Was that the moment you felt the nerves (sensation/strength) immediately failed?
FINALLY FIXING MY LEFT LEG WITH DR. MONEGAL IN BARCELONA- JULY 2,2015
crimsontide, I just removed my earlier comment to you because I found the
answer in some of your earlier posts.
The nerve damage is from the achilles surgery I thought
But it might be due to both the achilles surgery and deformity.
I thought it was sural damage, as part of my outer left foot is a bit numb, but might be more extensive
I had achilles surgery, then both legs had a cast on them for maybe 8 or 9 weeks. After I took the casts off, I noticed the left foot was a bit numb
and that my legs were atrophied . Can't do therapy in these casts , as the leg is locked in place. Took me a year to regain a lot of my strength back.
I don't think it's going to take years of therapy to get the strength back, and scarring can be fixed
I feel if the leg doesn't improve after a few months of therapy, that's it... Not going to improve ever
The right leg has no limp, and while not 100% yet, it is much better than the left leg. There's no limp, leg feels like a normal leg
I'm wondering if the casts have played a large role in my long recovery
I have a few major issues I'm concerned about
1- achilles/calf strength... Walking barefoot is not normal, and when I put on sneakers, walking feels 100x better
2- making sure my right leg is near 95 to 100% , as I'm not very confident in my left leg's ability to recover
3-Getting left leg fixed, which imo can only occur with a prosthesis. My left leg is just too weak
I assume physical therapy would still be beneficial, and get my right leg near 100%... Very doubtful about the left leg
I think there's a screw irritating my left leg now too
My left leg did not look normal on my last x ray,so will get another soon. I have a strong suspicion the left leg is shorter now
The length discrepancy is another reason I'm seriously consider below the knee amputation. The discrepancy would only be fixed by more invasive surgery, and that's only going to disturb the nerves even more
I might take a video later to show what my left leg does when I walk downstairs
You need an xray to check the post op alignment and a nerve conduction and emg test for the nerves. Start there.
@Crimsontide, you are most experienced in Limb lengthening. Would you say some people doing this surgery recovered 100%? Which are the worst results you've seen?
This will be my last, or next to last post
I wanna give advice to the members here
I can be rude sometimes, but it's only because I know how dangerous this surgery is
Ij get very aggravated when I see members being lied to about this surgery, or claimed great recoveries with zero evidence
I went through this surgery, as did others such as Sweden
My walking is still very bad, and already had a consultation with a prosthetist, and Dr. about below the knee amputation
My push off power has a severe deficit
I see some of these new patient threads, and they resemble infomercials
Do not get your medical advice from this site.
You may dislike me, but I'm telling you all the truth.
This surgery is not safe. You may get an ok outcome, you may get a very bad outcome. The odds are overwhelming that you will never be close to 100% again, and you will realize your life has not changed as much as you thought it would
Good luck to all,
Crimson
What did the doctor and prosthetist have to say?
Quote from: crimsontide on April 30, 2016, 11:34:08 PMThis will be my last, or next to last post
I wanna give advice to the members here
I can be rude sometimes, but it's only because I know how dangerous this surgery is
Ij get very aggravated when I see members being lied to about this surgery, or claimed great recoveries with zero evidence
I went through this surgery, as did others such as Sweden
My walking is still very bad, and already had a consultation with a prosthetist, and Dr. about below the knee amputation
My push off power has a severe deficit
I see some of these new patient threads, and they resemble infomercials
Do not get your medical advice from this site.
You may dislike me, but I'm telling you all the truth.
This surgery is not safe. You may get an ok outcome, you may get a very bad outcome. The odds are overwhelming that you will never be close to 100% again, and you will realize your life has not changed as much as you thought it would
Good luck to all,
Crimson
I hope you can passing throught difficulties by the way have you consult with Paley or Rozbourch to find out the best solution with out amputation?
The Drs have said I have a severe strength deficit in my ankle.
Still need to do a few tests
I've been looking at achilles replacement. I've read different peer reviewed articles, and the outcome seems to be very very good; recovery % in the 90's
The issue is that you need to find a tissue specialist.. Most of these Dr's that do LL are bone specialists, and have never done a surgery such as the one I need
I'll tell you another thing. Certain Dr's become much less responsive after you announce you're leaving the forum
Are you pointing at Monegal? It doesn't surprise me. Some patients say some doctors only care about you if you serve their aims.
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