I feel like this forum is run by Mangal Parihar? or am i being paranoid?

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Quote from: dan56 on June 07, 2018, 11:50:43 AMjust from curiosity.. are u muslim?

It's a funny question, and I get it why you asked but no I am not, seriously not.

@Penguin ,  If you write anything which is contrary to popular believes then either you should give solid undeniable proof or be ready for such comments. I again specifically ask
- You have stated whole of journey as a propoganda to showcase how good/caring/intelligent a certain doctor and his team and how smooth your experience went and no-trouble-no-pain kind of journey. How could this be true when everywhere people are facing pains and agonies?
-Despiye people asking for videos of your PT videos you have not provided.
-as far as x-rays are concerned I can give you as many x rays as you want from everywhere on the net.
-How could posting any pic of your leg or your lower body etc would be violating your privacy. Kilo has already proven the same.
-You have not defended any allegation of being fake other than some x-ray photos. Why can't you give some other solid proof like images/videos etc or even copy of your bill or certificate of operation.
- why are you so much defending a certain dr when people allege anything bagainst him, just shows that you are working on behalf of that dr. Like saying hospitals itoo good too clean too caring staff etc. This Stuff does not go down the throat.
-Neither anything new you have reported neither have anything negative...seems hard to believe.

So if you know I am wrong, prove it by some proof or else   it seems just like a paid ad/story.

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Quote from: totallyred on June 07, 2018, 05:07:48 PMIt's a funny question, and I get it why you asked but no I am not, seriously not.

@Penguin ,  If you write anything which is contrary to popular believes then either you should give solid undeniable proof or be ready for such comments. I again specifically ask
- You have stated whole of journey as a propoganda to showcase how good/caring/intelligent a certain doctor and his team and how smooth your experience went and no-trouble-no-pain kind of journey. How could this be true when everywhere people are facing pains and agonies?
-Despiye people asking for videos of your PT videos you have not provided.
-as far as x-rays are concerned I can give you as many x rays as you want from everywhere on the net.
-How could posting any pic of your leg or your lower body etc would be violating your privacy. Kilo has already proven the same.
-You have not defended any allegation of being fake other than some x-ray photos. Why can't you give some other solid proof like images/videos etc or even copy of your bill or certificate of operation.
- why are you so much defending a certain dr when people allege anything bagainst him, just shows that you are working on behalf of that dr. Like saying hospitals itoo good too clean too caring staff etc. This Stuff does not go down the throat.
-Neither anything new you have reported neither have anything negative...seems hard to believe.

So if you know I am wrong, prove it by some proof or else   it seems just like a paid ad/story.

Alright, show me fake x-rays then. But they should be of the same legs, with a Precice 2 nail inside, there should be steady callus growth too. I want 10 x-rays of each leg with callus growth increasing in each, and 2 perspective views of every single one.

I'll look for the certificate if you want, but I'm not posting my pictures to justify anything to anyone. Ironically, LL pictures would be the easiest to fake if one wanted to fake something. Increasing your femur in photoshop would take 5 minutes at max. If not posting my pictures makes me a fake, so be it lol. I don't see why one would take the trouble to "fake x-rays" instead of a picture of legs....

I know you've called Kilo fake too, but forum members have met him and he's posted videos confirming his legitimacy. And he's seen my pictures and knows more of my experience and could verify I was legit. A legitimate person with videos confirming I'm legitimate counts, no? But he's a Parihar patient so you're going not going to like that.

How does "the staff is good and the hospital is clean" not go down the throat? Neither of these are extravagant statements.... I never said the hospital was awesome. It's just not unsanitary or harmful from a practical perspective.

I've reported several negative things....
-My left leg needing to be operated twice
-Not having callus after I stopped lengthening/having really slow callus
-Walking unaided 9(!!) months post-op if I recall correctly
-Still not sprinting, although I can
-Unicorn and others have also said they had no pain sometimes. I think the low pain relates to slow callus growth, but that's just a theory. I honestly had a relatively painless experience but I've said that it didn't have much to do with Parihar. A surgeon obviously cannot control anything after the surgery. The painless-ness had more to do with my body and Precice.

Are you sure you're not looking at everything through a tainted lens? I've been pretty neutral and objective throughout.

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Also seriously I don't give a rat's ass if anyone goes to Parihar or not. Neither does Kilo and I'm pretty sure Parihar doesn't either. If you think I'm a fake advertiser, by all means don't go to Parihar

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Quote from: Penguinn on June 07, 2018, 05:39:00 PMAlso seriously I don't give a rat's ass if anyone goes to Parihar or not. Neither does Kilo and I'm pretty sure Parihar doesn't either. If you think I'm a fake advertiser, by all means don't go to Parihar

Okay seems legit.Anyways best wishes for the recovery. Not tainted view about anybody but was feeling a bit of salt in the stories and such a thread and posts even strengthened my views . Now, actually have looked at the Mangal Anand hospital in photos that kind of gave me some trust... although people may feel the exact opposite after looking at it. Thanks for the concern and reply.

Still would be grateful if you could post your photos with previous and current height at same exact location to view the difference.

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What? You just changed your opinion like that... straight 180? Okay...

Anyway, on this note, I'll try and take the Verified tag idea of diaries to the admin but the question remains of what makes a diary verified. People have said you can fake x-rays, but I've never seen someone make consistently fake x-rays. It'd be 10x easier to fake pictures of legs, they'd just be really well done mock-ups. Anyone that would like to opine?

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Quote from: Penguinn on June 07, 2018, 06:32:41 PMWhat? You just changed your opinion like that... straight 180? Okay...

Anyway, on this note, I'll try and take the Verified tag idea of diaries to the admin but the question remains of what makes a diary verified. People have said you can fake x-rays, but I've never seen someone make consistently fake x-rays. It'd be 10x easier to fake pictures of legs, they'd just be really well done mock-ups. Anyone that would like to opine?

Just FYI, x-rays need not be fake but they could belong to someone else who has done it for another purpose and yes they can well be photo shopped as well, requires expertise though.

Considering my.opinion, it did not change "like that" , rather coherencies in multiple facts did it which I was not able to find before igging it through you, kilo and other srcs.

 To be honest your story, on cursory reading seemed like TV commercials for reducing fat, growing hair, abs etc where only positivs are shown without any discussion of the negatives.

I had not doubted kilo even once, but him supporting you and both supporting same dr., made me doubt him as well, sort of chain rxn with end of chain being the dr who is unaware of all these .


There can not be foolproof method to prove veracity of diary, I guess as anything including photos, videos, storyline can be faked/duplicated. Only members can do it by reading it and asking pertinent questions and if he fails to defend, story is likely to be false.
In general videos would be more reliable than photos, at least 2-3 videos with some relation to surgery process/Rehab/post recover would increase the chances of diary being genuine.

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Quote from: Penguinn on June 07, 2018, 06:32:41 PMWhat? You just changed your opinion like that... straight 180? Okay...

Anyway, on this note, I'll try and take the Verified tag idea of diaries to the admin but the question remains of what makes a diary verified. People have said you can fake x-rays, but I've never seen someone make consistently fake x-rays. It'd be 10x easier to fake pictures of legs, they'd just be really well done mock-ups. Anyone that would like to opine?

Pics of legs in huge bulky frames are pretty hard to decently falsify on photoshop.

Although most people undergo external fixation due to reasons other than CLL, so pics of legs in external fixators wouldn't be hard to find.

X-ray pics are probably good if anyone is willing to do reverse image searches (use google's) and check whether they were not posted somewhere else before.

Anyway, posts like this would be as verified as they get - considering the added evidence on the previous pages.

I would like to know Android's opinion on the whole matter if/when he reads this.

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Quote from: totallyred on June 07, 2018, 07:16:53 PMTo be honest your story, on cursory reading seemed like TV commercials for reducing fat, growing hair, abs etc where only positivs are shown without any discussion of the negatives.

Damn. Sucks if true. Maybe I expected much worse during LL, got over enthused about the lack of pain and sounded like a promoter. The 8 hours sleep and painlessness isn't exaggerated one bit, although it has nothing to do with the doctor, imo. I'm interested to see if anyone else had a relatively painless experience and then see if they had delayed callus too. I got a hunch they're connected.

My main negative was the late walking/slow callus. People like programdude walked 5-6 months post op and I took 1.5 times that amount.

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Quote from: totallyred on June 07, 2018, 07:16:53 PMJust FYI, x-rays need not be fake but they could belong to someone else who has done it for another purpose

I know you agreed to my legitimacy so this is not an argument, I'm just curious.

Let's say I had a series of fake x-rays.. multiple angles for each leg, both legs with a P2 nail put in, 3" lengthened, and new ones every few weeks of the same variety with increased callus... they'd have to be of another CLL patient who'd posted his or her own diary, and then someone would recognize it and call the fake poster out. How would one randomly find so many fake x-rays of the same person, with that person not having posted their own experience? I get if it was 1 x ray but I posted 4 every time, and did that every 3-4 weeks.

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Quote from: myloginacc on June 07, 2018, 08:37:49 PMX-ray pics are probably good if anyone is willing to do reverse image searches (use google's) and check whether they were not posted somewhere else before.

Should've thought of this before Reverse search should do the trick.