Quote from: KiloKAHN on February 17, 2016, 10:03:48 PM
The 900,000 INR quote is the price for LON and includes the nails. After I decided on exfix only, Dr Parihar recommended I pay the LON amount because of how he planned to do the follow ups. It covered the additional surgery I needed to correct some misalignment and add the middle pins for stability, the changing of the rods to hexapod struts to improve alignment, and the extra hospital stay that I needed for that second surgery.
So, I suppose I will need to pay extra if I am to have LON and additional surgery for the misalignment? Or the LON itself reduce the chances of misaligment?
I've reached recovery to the point where I have no discomfort walking or going up and down stairs. The only discomfort I now get has to do with pressure in the calves while running. If it doesn't get any better within the next few months I'm going to go back to my local ortho and test for CECS.
Yea, give them a wee bit more time, they are still baby muscles.
I still recognize that I'm shorter than average, but now I rarely come across a woman who is taller than me and I feel more normal than I did previously. There were cases where people would blurt out matter-of-factly how short I was, but since the surgery I've yet to have my height mentioned by strangers. I could live at 5'7. Any extra height would be considered a luxury that I'd only do if I came across a lot of time and money to spend.
I've always thought US is an easy-making money country, or it is just a misconception? I am from the UK by the way.
Dr Parihar definitely has a safety first attitude and he never gave me the "don't worry, no problem" response that other docs in India have given patients when they were worried about something. In fact, there was one visit where I was walking into the lobby with the zimmer frame, very exhausted and breathing heavily, and he immediately had me get my chest x-rayed to make sure I didn't have any issues. Turns out it was just fatigue, but he never ignored me when I had a concern. I'd say the difficulty of doing surgery with Dr Parihar primarily lies in being in a foreign country and not having much opportunity for social interaction outside of the hospital - all of his patients are Indian and I was the only person going to him for CLL at the time. However, if you're willing to spend the money for a long term stay at a hotel, it's very comfortable under the circumstances.
Do you think if Dr Parihar may go up to 6.5cm if the patient seems fit and potential?
No More Mal-Kahn-Tent - External Tibias - Dr Parihar
Quote from: 3dtxpg2 on February 17, 2016, 11:13:28 PMDo you think if Dr Parihar may go up to 6.5cm if the patient seems fit and potential?
I think if your condition is fine then he may let you push it that extra half centimeter, but if you have significant knee bend and equinus way before that then he'll advise against it. He mainly has a 6 cm limit for tibiae lengthening because by that point almost every patient has issues they need to correct, and the complications increase exponentially the more you lengthen beyond it.
Quote from: KiloKAHN on February 17, 2016, 10:03:48 PM
The 900,000 INR quote is the price for LON and includes the nails. After I decided on exfix only, Dr Parihar recommended I pay the LON amount because of how he planned to do the follow ups. It covered the additional surgery I needed to correct some misalignment and add the middle pins for stability, the changing of the rods to hexapod struts to improve alignment, and the extra hospital stay that I needed for that second surgery.
So, I suppose I will have to pay extra if I am to have LON and need additional surgery for the misalignment? Or the LON itself reduces the chances of misalignment?
Tried to insert multiple quotes in one post, end up I screwed up lol! Please allow me to ask some previous question again.
What about gym activities like leg presses? Can you manage at this stage?
Quote from: 3dtxpg2 on February 18, 2016, 10:18:06 PMSo, I suppose I will have to pay extra if I am to have LON and need additional surgery for the misalignment? Or the LON itself reduces the chances of misalignment?
What about gym activities like leg presses? Can you manage at this stage?
LON helps prevent misalignments in the bone. If Dr Parihar put the middle pins in during the initial surgery it would have helped prevent misalignment as well, but it would have left a long scar in the middle of my legs after distraction so he decided to add them after the lengthening phase was completed. I'm not sure about the costs for correcting complications if you decide to go the LON route. Best to e-mail him directly about that.
I'm allowed to do leg presses now, but I'm just doing them light at 110 lbs. My leg muscles got a lot weaker.
Does he do femur lengthenings on a regular basis. Non cosmetic I mean. All his videos seem to be about tibiae.
Also what's his email? Thanks
Quote from: SAD on February 19, 2016, 05:51:42 AMDoes he do femur lengthenings on a regular basis. Non cosmetic I mean. All his videos seem to be about tibiae.
Also what's his email? Thanks
He has instructional videos on his channel about applying fixators to femurs. I think they start with 'Sawbones Workshop'. I saw a number of patients in his lobby with all kinds of external fixators throughout my visits to the hospital for checkups and physio. I saw some wearing the unilateral fixator on one femur and some wearing the half-ring.
You can e-mail him at [email protected] or Dr Ahuja at [email protected]
Helloo
are there chances of height compression or we will get the full height turned?
Quote from: Dreamtaller on February 19, 2016, 06:57:43 PMHelloo
are there chances of height compression or we will get the full height turned?
Once the bone has been lengthened and locked into position then there is no real compression. At most a couple mm. Dr Parihar told me that articles showing a difference between amount lengthemed on x-rays and total height actually gained is due to magnification of the x-rays not being taken into consideration and measurement errors.
I take fentanyl patches mixed with a little bit of Hashish, and I go to sleep, and sleep like a baby. I have everyday since my surgery. The hashish was right after I left the hospital though. I plan on switching to Coconut oil hash oil for sleep. I am from US, and we believe Marijuana to be a healthier alternative to pain. And sleep problems.
Quote from: KiloKAHN on July 30, 2014, 03:40:32 AMUpdate: 7/30/2014
This last week has been so damn frustrating. Every night it takes me longer than the night before to mange to get a moment's sleep. I have bags under my eyes and am dead tired but the discomfort and pain prevents any chance of dozing off. If I find one comfortable position, that same position is no longer comfortable the next night. I can't lie with a pillow between my frames, can't fan my legs out, can't have my legs straight and my upper body sitting up, nothing works and I'm even taking sleeping pills. Walking is still impossible and standing makes my legs hurt now. At this point I don't care if a stronger pain killer will be injurious to my liver. I just don't want to be up another week. Takes me up to 8 hours just to doze off for a half hour and when I wake from that there's no going to sleep again.
I just start distraction like 4 days ago. I was able to walk just fine. But Now when ever I walk, my bones pop right around the area of where the bones broke, so it has made me skeptical about walking, and fearful of it.
I am doing it with Dr. Dhawan.
Quote from: KiloKAHN on July 30, 2014, 08:22:14 AMI just got a reply from Dr Parihar after telling him about the pain issue. He wants me to go back to .75 mm per day each day instead of alternating days between .75 mm and 1 mm. He said if that does not help with the pain then he will consider adding the two pins to the middle ring early to improve stability instead of adding them once distraction is complete. It would mean a scar in the middle that goes the length of how much left I have to distract, but he said the longer scar is probably preferable to the pain I'm experiencing now. I have to update him in a few days and he's going to have someone get in touch with me to deliver a wheelchair here so I don't have to be stuck in bed all day and can at least wheel out to the lounge or something for a change of scenery.
I took that for a bit but they took me off it. I'll ask about taking it again next time I see him.
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