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Posted on Jan 18, 2017, 11:11 pm
#881

I can't recall if I've mentioned this earlier, but one thing to note that's changed from pre-CLL is that my legs fall asleep more easily than they did before, and usually it happens when seated on a toilet or something. When a leg falls asleep it pretty much turns into an anchor and I have to shake it a little bit and remove the tingling sensation before trying to walk again. It feels a bit different from when a leg would fall asleep before CLL in that my legs feel a lot heavier now, which is due to a combo of longer tibias and comparatively weaker quads. Not something that's life changing, but definitely a noticeable difference. I haven't read of others noticing this change after CLL though.

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Posted on Jan 19, 2017, 9:22 am
#882

I have that tooo...  Legs feel MUCH heavier  when standing up after sitting down for a while, such as a long trip in a car.

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Posted on Jan 25, 2017, 7:56 pm
#883

I wonder if LL reduces the diameter of blood vessels in the legs. That's just my intuition but I couldn't find any research confirming this.

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Posted on Jan 26, 2017, 8:57 am
#884

did you ask your doctor about your legs falling asleep?

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Posted on Feb 27, 2017, 9:45 pm
#885

My local ortho referred me to a foot and ankle specialist and I'm in his office waiting now. Just got measured and weighed. I weigh 164 lbs (74.5kg) and height is 5'7.22" Gonna have to explain to a new doc that I got CLL. That's never fun lol.

Will know if I have CECS shortly.

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Posted on Feb 27, 2017, 9:48 pm
#886

You are above 170 cm, is cool that you didnt experience subsidence.

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Posted on Feb 27, 2017, 9:53 pm
#887

Tell us the reaction/opinion of the doc when you tell him you did CLL

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Posted on Feb 27, 2017, 10:25 pm
#888

So he just read the notes that I had CLL. Didn't say anything about it at all, it was just 'matter of fact' for him. He said that leg lengthening would put the legs at risk for CECS because you're expanding the muscle to a size greater than was intended and the compartments have a harder time getting the blood flow through. Closest they could test me is March 13, and that involves sticking a needle in each compartment and measuring the pressure, then having me run on a treadmill until I'm in pain and measuring the pressure again. If I have it, then we schedule surgery to do fasciotomy.

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Posted on Feb 27, 2017, 11:17 pm
#889

Quote from: KiloKAHN on February 27, 2017, 10:25:11 PMSo he just read the notes that I had CLL. Didn't say anything about it at all, it was just 'matter of fact' for him. He said that leg lengthening would put the legs at risk for CECS because you're expanding the muscle to a size greater than was intended and the compartments have a harder time getting the blood flow through. Closest they could test me is March 13, and that involves sticking a needle in each compartment and measuring the pressure, then having me run on a treadmill until I'm in pain and measuring the pressure again. If I have it, then we schedule surgery to do fasciotomy.

You'll get through this KiloKAHN. A fasciotomy would be an annoyance but if it solves the issue then it needs to be done and then you are on the road to recovery. Best of luck man, you deserve to enjoy your new leg length without all of these complications.

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Posted on Mar 7, 2017, 3:36 am
#890

Well I just got laid off so fasciotomy will be postponed until further notice. Not going to pay out of pocket, that's for sure.

I knew I hated Mondays the most.

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