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Posted on Apr 18, 2018, 12:15 pm
#881

Hi everyone,

Short update UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016    It's almost 2 years now since I had my initial LL surgery.  My left leg which was fractured during 1st surgery has now finished lengthening and fused beautifully.

My right leg on the other hand, has a bit of calluses on one side and nothing at all on the other.

I've learnt that one of my classmates who had surgery at the same time as me, had the g-nail break.  It is so sad because it means broken femur again.  Now, the option is to safely remove pieces of the gnail, implant a trauma nail while trying to maintain height since there's also non-union.  And maybe some bone graft in the bald areas.

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Posted on Apr 18, 2018, 12:27 pm
#882

Quote from: Unicorn888 on April 18, 2018, 12:15:44 PMHi everyone,

Short update UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016    It's almost 2 years now since I had my initial LL surgery.  My left leg which was fractured during 1st surgery has now finished lengthening and fused beautifully.

My right leg on the other hand, has a bit of calluses on one side and nothing at all on the other.

I've learnt that one of my classmates who had surgery at the same time as me, had the g-nail break.  It is so sad because it means broken femur again.  Now, the option is to safely remove pieces of the gnail, implant a trauma nail while trying to maintain height since there's also non-union.  And maybe some bone graft in the bald areas.
Hi
So do you have  scheduled nail replacement for your leg?

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Posted on Apr 18, 2018, 9:21 pm
#883

Quote from: doomsday on April 18, 2018, 12:27:16 PMHi
So do you have  scheduled nail replacement for your leg?

I don't have anything planned.  My NHS doc wants to bone graft me asap but I'm so traumatized by more surgeries, am not sure I'll be able to cope.  The pain, the non-healing, the helplessness, the lack of purpose, the fact that I've next to nothing makes my life a bit pointless.

I really really try to be happy each day when I wake up, to tell myself this too shall pass, to have hope... but today is not one of those days.  I'm just beat by this neverending nightmare.  And I don't see any light nor any end of the tunnel in which I hide my deformity.  And I'm free falling into an abyss.

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Posted on Apr 18, 2018, 9:35 pm
#884

Dear sister, I wish mere words would suffice in reducing your pain. What I can say is that I think everyone on this board is shedding tears about your situation. I know I do, so you are not alone.. keep up the faith,

greetings

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Posted on Apr 18, 2018, 10:04 pm
#885

I say do the bone graft ASAP like the doctor recommends. You've done a lot of alternative treatments in the past, and you feel defeated that they were in vain, but this is your way out. Best of luck.

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Posted on Apr 18, 2018, 10:22 pm
#886

Quote from: Unicorn888 on April 18, 2018, 09:21:19 PMI don't have anything planned.  My NHS doc wants to bone graft me asap but I'm so traumatized by more surgeries, am not sure I'll be able to cope.  The pain, the non-healing, the helplessness, the lack of purpose, the fact that I've next to nothing makes my life a bit pointless.

I really really try to be happy each day when I wake up, to tell myself this too shall pass, to have hope... but today is not one of those days.  I'm just beat by this neverending nightmare.  And I don't see any light nor any end of the tunnel in which I hide my deformity.  And I'm free falling into an abyss.
you gotta man up and do it for you own sake.

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Posted on Apr 19, 2018, 12:09 am
#887

I dont believe any bone graft could fix an 8cm gap.
The best for you is geting a precise 2 nail (even better stryde which is fully weight bearing when it comes out), shortn up to 3 cm, do a trauma in your bone edges to provoke a new bone bridge and then start slowly lengthen again.

I think that this solution has the best chances to succeed and solve your problem completely. I wonder why doctors dont try it and recommend bone grafts and all this bs in a huge 8cm gap which are almost sure to fail.

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Posted on Apr 19, 2018, 12:17 am
#888

Here's the latest 3D scan and even though my doctor hasn't seen it yet, this is what I measured.  I have some callus bridge on one side of the femur which I think is an improvement.

The other side is still completely empty.  I will definitely consider grafting, that's the only thing NHS wants to do right now.  They do not want to risk further with nail removal, shortening, fitting in new nails and relengthening.

UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016

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Posted on Apr 19, 2018, 11:28 am
#889

Quote from: Body Builder on April 19, 2018, 12:09:14 AMI dont believe any bone graft could fix an 8cm gap.
The best for you is geting a precise 2 nail (even better stryde which is fully weight bearing when it comes out), shortn up to 3 cm, do a trauma in your bone edges to provoke a new bone bridge and then start slowly lengthen again.

I think that this solution has the best chances to succeed and solve your problem completely. I wonder why doctors dont try it and recommend bone grafts and all this bs in a huge 8cm gap which are almost sure to fail.

Hi Body Bulider,

I understand Precice 3 came out?  Magnetic lengthening + fully weight bearing?  Do you know?  That would change the lives and quality of leg lengthenings a lot.

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Posted on Apr 19, 2018, 11:47 am
#890

Quote from: Body Builder on April 19, 2018, 12:09:14 AMI dont believe any bone graft could fix an 8cm gap.
The best for you is geting a precise 2 nail (even better stryde which is fully weight bearing when it comes out), shortn up to 3 cm, do a trauma in your bone edges to provoke a new bone bridge and then start slowly lengthen again.

I think that this solution has the best chances to succeed and solve your problem completely. I wonder why doctors dont try it and recommend bone grafts and all this bs in a huge 8cm gap which are almost sure to fail.

Also, you've been right about many things.  We were so blind towards the procedure we received.  And with the latest nail break, we recognize that everything we were sold were scams and lies.  We were under a form of Stockholm Sydrome since our doctor was very dominant, always disapproving and psychologically abusive.

The fact that we had to do useless pre-training so the doctor can charge an additional £3k for it.  2-4 weeks of muscle training before surgery makes zero difference and the cybex tests to measure muscle improvements (at an additional charge, of course) were all circus hoops for us to jump through.  From my experience, if anything can help, it's to stretch and improve flexibility and even that cannot be achieved in a mere 1 month.

Even the psychological test where we had to pay an astronomical sum so that we can provide the doctor a cover should anything go wrong (same thing with the motivational essay he forces us to write).  There is no way a psych can evaluate how fit we are mentally for this procedure under the constraints of 60 minutes.  Let's be clear - if you're willing to pay an exorbitant price to get your legs broken and then lengthened = you ARE crazy to some degree.  And what about the classmates who failed, and then magically pass after they pay additional thousands of pounds to another psych?

Post surgery, even same day upon waking up from general anaesthesia, making us walk using our frames, climbing stairs (!!!) and cycling (you cannot imagine how painful it is trying to get up on the stationary bike when you've 2 broken legs, are dizzy and in excruciating pain) do not make you heal faster but rather exposes you to unnecessary risks and danger of falling (which some classmates did).

And then forcing us to go to physio everyday where most of us endure 20-30 minutes stress of taxi hell, and then frame hopping to the gym hallway (most of the time, we don't even have our own room so we exercise in the hallway! with gym folks gingerly walking between our legs) so that we can do some leg lifts that we could easily do at home.  The PT is not even allowed to touch us, much less contribute to anything at all.  Going to Isokinetic is even worse, we're left there by ourselves most of the time to be told by our designated PT to stretch.  That's about it.  And once in a while, we get a consultation with the Isokinetic doctor who is merely a glorified PA noting our complaints and dispenses painkillers/sleeping pills.

Best of all is the bi-weekly consultations with the doctor, who is constantly late by several hours, and when we finally get to see him, he never has our results in front of him because his server is not working, the hospital hasn't sent it - it's always one excuse or another and we leave with exactly the same info as when we arrive, no idea of our LL progress. But we're constantly reminded how lucky we are to be followed by him personally at no extra charge.

In hindsight, these are all reckless endangerment and they do not contribute to fast bone consolidation.  These are just to justify the high fees of the doctor which he will sell to you as a great deal because you're getting so much physio, isokinetic and consultations in one package.

Best of all is the torture device.  Those of you who've done manual clicking will know how crazy it is, to be twisting your leg in weird positions, fresh after they've been broken, 15 times a day for 60 days.  It's mental anguish and trauma.  Simply get anyone who's broken anything to bend their broken bone in 90 degree angles 15x a day, see their reaction (if they don't punch you in the face first).  The pain, the frustration, the dread, the nightmares that follow afterwards, the PTSD ensues.

While it is true that weight bearing might help with bone growth, it plays such a small part when you factor in other attributes like genetics, diet, age, gender - anyone who's plastered up with a leg cast hanging in the air, being immobile for a month, will still FUSE.  There is zero need to perform the circus stunts prescribed by our doctor.

At the end of the day, it's all just to justify his ego and price.  This is the hindsight and conclusion we've come to, after seeing our classmate's recent gnail break; when we've all paid a hefty price for the "best doctor" for a fully weight bearing and "strongest nail" in the world (it's not even titanium, just stainless steel).  All BS.  And all those youtube success videos?  Staged.  It's not the doctor who makes successful stories, young male LLers ARE naturally the best candidates for this procedure.

The gnail belongs to a museum of medieval torture devices.

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