How would you react if it fails?

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Quote from: redwedding on April 19, 2021, 01:39:10 PMThe failures can be extreme or minor. The extreme failures are the amputation due to the deep bone infection, the pulmonary embolism which can lead to the long term complications in some cases, the nerve pain which never goes away. The extreme failures can be reduced  by 50% by doing the one leg first and then the other. After the one leg if you feel it was the worst decision of your life then you have ruined only the one leg.

The more minor failures are functional limitations like pain while standing or walking the long distances or early onset of the arthritis. These are reduced by doing the both legs together and stopping at a short distance of 5cm or lesser. When you stop both the legs are equal and you are recovered soon. Nobody knows what happens when you stretch the legs so you have to take the risk about this type of failure.

hope this helped you
sergio

That sounds quite extreme. Surely Paley wouldn't let that happen? If I asked him about this in a consultation, is there a legal requirement for him to disclose it to me?

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I did my surgery with paley

In fact your chances of him answering this to you are better pre surgery

1. Would there be a rate in change of blood flow post lengthening as now blood needs to travel longer and furthermore does it change dynamics of heart.

2. Long term implications after  40 as I’m 43 and I am breathing much heavier post this surgery.

3. As for fat embolism he says it’s very few cases but I was one of them so how reliable is that information I’m not aware

4. Post care he has to review your x rays or atleast over see or make it clear you won’t do surgery. I made this mistake and now I’m in hands of his assistants.

He made it clear to me I would only do surgery and rest his team would follow up.

I believe what to do and not to during distraction is critical

I have had to actually learn hard way and from forum adjust my distraction rates slowly

Why should one do that when u r paying 100k usd.

Being ones own doctor is worst feeling to go through with uncertainty.

Just my suggestions ask each and every question that runs through your mind

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Quote from: Ahd1978 on April 19, 2021, 02:40:47 PMI did my surgery with paley

In fact your chances of him answering this to you are better pre surgery

1. Would there be a rate in change of blood flow post lengthening as now blood needs to travel longer and furthermore does it change dynamics of heart.

2. Long term implications after  40 as I’m 43 and I am breathing much heavier post this surgery.

3. As for fat embolism he says it’s very few cases but I was one of them so how reliable is that information I’m not aware

4. Post care he has to review your x rays or atleast over see or make it clear you won’t do surgery. I made this mistake and now I’m in hands of his assistants.

He made it clear to me I would only do surgery and rest his team would follow up.

I believe what to do and not to during distraction is critical

I have had to actually learn hard way and from forum adjust my distraction rates slowly

Why should one do that when u r paying 100k usd.

Being ones own doctor is worst feeling to go through with uncertainty.

Just my suggestions ask each and every question that runs through your mind

Thanks. Perhaps he can't follow up with you because he is not in Poland. Or will he not see patients in Florida either after the surgery?

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He usually doesn’t see patients unless major complication

Other guys who did it in Florida were with robbins

He is coming to poland in may and I am sure I would see him

But then I’m starting consolidation

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Quote from: Ahd1978 on April 19, 2021, 04:09:43 PMHe usually doesn’t see patients unless major complication

Other guys who did it in Florida were with robbins

He is coming to poland in may and I am sure I would see him

But then I’m starting consolidation

How are you doing on the whole? Was the complication dealt with successfully? Are you on track for your goal?

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Well fat embolism was yes. I was in ICU for 3 days then moved to normal ward.

Till 6 cm I was ok

But now I don’t know if it’s fatigue or what but my breathing is very heavy and I am exhausted.

I think I’m going to quit distraction post my blood results which are tomorrow

Checking for dimmer levels and other vitals

I’m 43 so an older guy has to worry lot more about other things. One of them bearing health of most of organs. For younger I presume it’s easier.

So blood tests would identify why I have such level of breathing and why so much fatigue

It’s not an easy surgery by any means

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Quote from: Ahd1978 on April 19, 2021, 06:30:11 PMWell fat embolism was yes. I was in ICU for 3 days then moved to normal ward.

Till 6 cm I was ok

But now I don’t know if it’s fatigue or what but my breathing is very heavy and I am exhausted.

I think I’m going to quit distraction post my blood results which are tomorrow

Checking for dimmer levels and other vitals

I’m 43 so an older guy has to worry lot more about other things. One of them bearing health of most of organs. For younger I presume it’s easier.

So blood tests would identify why I have such level of breathing and why so much fatigue

It’s not an easy surgery by any means

Wow you underwent LL in your 40s. I have not heard many accounts at this age.

Here I am concerned of my reaction to the procedure in my 30s.

Are you now content with your height, considering the complications mentioned was it worth the 100k $?

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Started at 176,5

Now at 182.5

I have distracted close to 6,5 cm but when measuring I land at 182.5cm.

I will go for extra .5 to just touch 183 cm

Yes it is awesome but this fatigue I wanna get to bottom of it.

I wasn’t happy with post op care as I have been my own doctor.

Getting solid physio helps a lot. Like when I was very tight physio put bands on my knees and thighs that helped me distract W lesser pain.

Good follow up makes it all worth it

I have be persistent with paley office that I want blood tests every 2 weeks I will pay because I don’t want any dynamics of my organs to get affected.

The breathing I should be able to figure out post blood tests tomorrow

Yes it’s worth it. But it’s long drawn process. Yes I am only guy jn 40s who’s done this. Some guys in late 30s but 40s I’m not sure

Hence why I say 6 cm is where it’s age zone. After 6 I have been having complications in breathing already. It just feels something is changing drastically nerves irritate lot more. And now I can feel muscle loss in legs it’s different loss. Not the one where u regain. I feel it getting weaker internally.

That’s why I’m stopping at 6.5 so I’m pushing 10 percent above safe limits and done

Hope this helped

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Quote from: Ahd1978 on April 19, 2021, 08:37:19 PMStarted at 176,5

Now at 182.5

I have distracted close to 6,5 cm but when measuring I land at 182.5cm.

I will go for extra .5 to just touch 183 cm

Yes it is awesome but this fatigue I wanna get to bottom of it.

I wasn’t happy with post op care as I have been my own doctor.

Getting solid physio helps a lot. Like when I was very tight physio put bands on my knees and thighs that helped me distract W lesser pain.

Good follow up makes it all worth it

I have be persistent with paley office that I want blood tests every 2 weeks I will pay because I don’t want any dynamics of my organs to get affected.

The breathing I should be able to figure out post blood tests tomorrow

Yes it’s worth it. But it’s long drawn process. Yes I am only guy jn 40s who’s done this. Some guys in late 30s but 40s I’m not sure

Hence why I say 6 cm is where it’s age zone. After 6 I have been having complications in breathing already. It just feels something is changing drastically nerves irritate lot more. And now I can feel muscle loss in legs it’s different loss. Not the one where u regain. I feel it getting weaker internally.

That’s why I’m stopping at 6.5 so I’m pushing 10 percent above safe limits and done

Hope this helped

Do you think in your current state you can do a remote desk job 6 hours a day?

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Yes u can

Remote desk job yes

But when tired rest

I was have conf calls in icu because of nature of my work

In hind sight o should have rested more and avoided stress which also I believe has affected my breathing.

At this age and after crucial surgery your immunity isn’t same so I wish I had been more at ease but now a lesson shared and knowledge shared with all