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Posted on Apr 19, 2021, 9:40 pm
#21

Quote from: Ahd1978 on April 19, 2021, 08:37:19 PMHence why I say 6 cm is where it’s age zone. After 6 I have been having complications in breathing already. It just feels something is changing drastically nerves irritate lot more. And now I can feel muscle loss in legs it’s different loss. Not the one where u regain. I feel it getting weaker internally.

That’s why I’m stopping at 6.5 so I’m pushing 10 percent above safe limits and done


Ahd, how did the muscles/nerves feel like around your femur the first 1 to 4 cm of lengthening? Was it noticeably less tense and irritating than lengthening past 4 cm?

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Posted on Apr 19, 2021, 10:34 pm
#22

Quote from: Ahd1978 on April 19, 2021, 08:37:19 PM
Yes it is awesome but this fatigue I wanna get to bottom of it.

Are you getting enough calories? I know sleep is probably more sporadic, but I'd imagine anyone would be somewhat fatigued during LL since your body is exerting energy and nutrients for osteogenesis.

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Posted on Apr 19, 2021, 11:06 pm
#23

Quote from: Ahd1978 on April 19, 2021, 08:37:19 PMStarted at 176,5

Now at 182.5

I have distracted close to 6,5 cm but when measuring I land at 182.5cm.

I will go for extra .5 to just touch 183 cm

Yes it is awesome but this fatigue I wanna get to bottom of it.

I wasn’t happy with post op care as I have been my own doctor.

Getting solid physio helps a lot. Like when I was very tight physio put bands on my knees and thighs that helped me distract W lesser pain.

Good follow up makes it all worth it

I have be persistent with paley office that I want blood tests every 2 weeks I will pay because I don’t want any dynamics of my organs to get affected.

The breathing I should be able to figure out post blood tests tomorrow

Yes it’s worth it. But it’s long drawn process. Yes I am only guy jn 40s who’s done this. Some guys in late 30s but 40s I’m not sure

Hence why I say 6 cm is where it’s age zone. After 6 I have been having complications in breathing already. It just feels something is changing drastically nerves irritate lot more. And now I can feel muscle loss in legs it’s different loss. Not the one where u regain. I feel it getting weaker internally.

That’s why I’m stopping at 6.5 so I’m pushing 10 percent above safe limits and done

Hope this helped

You are still in a so early stage that you can’t pretend nothing more than this. Being tired is normal, you are not even in consolidation. The worst is gone luckily. You’ll be always better.

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Posted on Apr 20, 2021, 4:28 am
#24

Thanks for questions

I went for 1mm first 3.5 cm

I think that was a mistake. I should have done only .75.

Regeneration safe limits are .66mm so to push 10 percent more is ok.

I was so tight in beginning that I was taped up everywhere. Tapes hold certain muscles. Like abductors knee area thigh muscle I taped it all as each muscle was getting stiff and trying to put more pressure. I wouldn’t say it was pleasant.

Other wise at .75 it would have been breeze.

Nerve tingling started post 5 cm which is sign that We are crossing the limits it can handle.

Body is a Beautiful machine. If u truly analyse CLL the work done by any surgeon is only to prep the body. It’s body that does rest of the work. Callus forming. Adjusting to new growth to vessels to blood flow. I mean the body is best surgeon of it all.

So from all these experiences one thing is for sure I will listen more to my body than any surgeon in respect of what I truly feel internally.

I have had irregular heart beat twice so far and I was told distraction doesn’t affect breathing or vessels. But I am not a doctor. However every time I distract I feel heavier in breathing.  Is it tightness. ?

I don’t know these questions hence I am in figuring out stage. Doing bloods which is think should be mandatory every 2 weeks. Just x rays are not enough.

Even healthy young guys get pulmonary embolism or dvt. Why wait I say for something bad. Why can’t tests been done so we can avoid stuff.

I wil have my x rays too this week I had an ambitious goal to get to 184.5 and settle at 184 day height which I have no accepted to be at 183 cm day height and I wil be happy.

To sleep every night with heavy breathing is not joyful and to push body to extreme limits isn’t joy either.

I have mentioned this before in 40s body starts to change. I was super athletic till late 30s. My spirit is same. Just body doesn’t react at same level.

So I can only say from my experience stay within 10 to 15 percent of safe limits. You may handle 8 cm now but in future it wil catch up.

And remember paley is 65 in 20 years he would be 85 and no one is going to answer to your queries then. We as humans love to be dependant on doctors as we think they are saviours.  Doctors are blessing with their respective skill set.

But we know our bodies best.

So chose wisely

Just to add in here my acl doctor was one of best German docs and post my first surgery he left bone splinters in my knee area and I had to do second op which weakened knee further. So no matter who doc is once u open up body it never stays same and in future if you get lazy with physio or excercising you will pay for it with pain and weakness.

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