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Posted on Sep 10, 2014, 4:26 pm
#231

Quote from: ShortyMcShort on September 10, 2014, 04:09:32 PMDoes he have a limit on femurs or will he allow the full 8cm for Precice 2 femurs?

I don't think his 6 cm limit applies to femurs.

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Posted on Sep 11, 2014, 3:29 pm
#232

Update: 9/11/2014
Today all my good luck ran out and I have entered the limb lengthening realm of post-op complications. I had the brilliant idea of increasing my lengthening speed from .75 mm to 1 mm per day for seven days and it completely bit me in the ass. I woke up for the second day in a row with stiff ankles. Did ankle movement exercises for about 20 minutes until the stiffness went away. Thought I'd try standing a while and as soon as I made a move to stand up I had a sharp pain underneath my right knee. I spent a few minutes massaging it and pulled myself up onto the walker, ready to begin my standing. But it wasn't happening. I found that I could no longer touch the floor with the heels of my feet. Only my toes made contact with the floor, and as I tried to press my heels to the ground I was greeted with sharp pain below my knees again. I had gotten equinus out of nowhere. When I got my x-rays taken I found that despite me lying with my legs straight as much as I could tolerate each day, only my most distal ring made contact with the table and the middle and proximal rings remained elevated no matter how much I pressed my knees down. Knee flexion contracture decided to greet me with its ugly presence. It was like a nightmare.

Dr Parihar was held up at another hospital and so I only saw Dr Divya during my appointment. He checked my flexibility with his assistant and forced my legs to extend, while also checking how much he could bend my feet toward the rings. It was decided that I stop lengthening for the next three days and focus entirely on physiotherapy. I now have a physiotherapist coming to the hotel each day for sessions until this gets fixed. My x-rays showed that I hit exactly 5 cm after turning 5.6 cm. Divya told me that with the way things are he thinks I can get another half centimeter, and optimistically i can probably push to 6 cm provided the physiotherapy goes well. I was given a shot on my thigh to relieve pain and had a physio session downstairs with Pratiksha. She brought in a device that was attached with sticky pads on my quads. It gave me muscle stimulus through electric currents for 30 minutes before I had to do leg extensions and fight the equinus. The whole session hurt worse than usual and I had to do it in a room with a lower bed because I could no longer bring myself up onto the higher one I always did my sessions on due to the equinus. 

Pretty awful day all in all.

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Posted on Sep 11, 2014, 3:59 pm
#233

Quote from: KiloKAHN on September 11, 2014, 03:29:33 PMUpdate: 9/11/2014
Today all my good luck ran out and I have entered the limb lengthening realm of post-op complications. I had the brilliant idea of increasing my lengthening speed from .75 mm to 1 mm per day for seven days and it completely bit me in the ass. I woke up for the second day in a row with stiff ankles. Did ankle movement exercises for about 20 minutes until the stiffness went away. Thought I'd try standing a while and as soon as I made a move to stand up I had a sharp pain underneath my right knee. I spent a few minutes massaging it and pulled myself up onto the walker, ready to begin my standing. But it wasn't happening. I found that I could no longer touch the floor with the heels of my feet. Only my toes made contact with the floor, and as I tried to press my heels to the ground I was greeted with sharp pain below my knees again. I had gotten equinus out of nowhere. When I got my x-rays taken I found that despite me lying with my legs straight as much as I could tolerate each day, only my most distal ring made contact with the table and the middle and proximal rings remained elevated no matter how much I pressed my knees down. Knee flexion contracture decided to greet me with its ugly presence. It was like a nightmare.

Dr Parihar was held up at another hospital and so I only saw Dr Divya during my appointment. He checked my flexibility with his assistant and forced my legs to extend, while also checking how much he could bend my feet toward the rings. It was decided that I stop lengthening for the next three days and focus entirely on physiotherapy. I now have a physiotherapist coming to the hotel each day for sessions until this gets fixed. My x-rays showed that I hit exactly 5 cm after turning 5.6 cm. Divya told me that with the way things are he thinks I can get another half centimeter, and optimistically i can probably push to 6 cm provided the physiotherapy goes well. I was given a shot on my thigh to relieve pain and had a physio session downstairs with Pratiksha. She brought in a device that was attached with sticky pads on my quads. It gave me muscle stimulus through electric currents for 30 minutes before I had to do leg extensions and fight the equinus. The whole session hurt worse than usual and I had to do it in a room with a lower bed because I could no longer bring myself up onto the higher one I always did my sessions on due to the equinus. 

Pretty awful day all in all.

I had the same problem. Just force your heel down as much as you can, it will hurt like hell but that's the way it is. In 2 weeks you should be fine again. Do 5-10 min physio every few hours, worked out best for me.

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Posted on Sep 11, 2014, 4:08 pm
#234

Wow sorry to hear, that is bad news but Im sure you'll get through it. So up until 5cm and while you were still on .75mm per day everything was smooth sailing?
With the extra physio you are doing atm, are you paying extra money for it or is it inclusive in the price?

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Posted on Sep 11, 2014, 5:44 pm
#235

Quote from: 123 on September 11, 2014, 03:59:01 PMI had the same problem. Just force your heel down as much as you can, it will hurt like hell but that's the way it is. In 2 weeks you should be fine again. Do 5-10 min physio every few hours, worked out best for me.

The shot I received at the hospital made it so I didn't have pain below the knees while standing with the walker so I tried your suggestion and managed to get my heels to the floor and keep them there for a few minutes. I sometimes find myself bending forward a bit which lessens the stress on the heels and have to straighten my body out again to get the full weight on them. I like the stretch this gives and because I was actually able to get both feet planted on the ground and keep them there while concentrating I'm going to keep on doing this exercise. It relieved a lot of anxiety just now and made me more confident that I can beat this through stretching alone. Thanks a bunch, 123.  No More Mal-Kahn-Tent - External Tibias - Dr Parihar


Quote from: ShortyMcShort on September 11, 2014, 04:08:33 PMWow sorry to hear, that is bad news but Im sure you'll get through it. So up until 5cm and while you were still on .75mm per day everything was smooth sailing?
With the extra physio you are doing atm, are you paying extra money for it or is it inclusive in the price?

Yep, outside of the lingering and random pains that come from lengthening, I haven't had any complications before this point. I probably wouldn't have had them now if I had stuck with .75 mm per day though. Lengthening faster really does increase the speed at which complications will arrive.

The physiotherapy will be extra because he's going to be coming to my hotel. I'll have to pay him directly and I don't think Dr Parihar gets any of that money. I'm able to arrange with the physiotherapist when I'll pay him though (i.e. once after each session or a lump sum at the end of it all).

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Posted on Sep 11, 2014, 6:44 pm
#236

What you described is common and normal, and nothing you can't stretch your way out of pretty quickly.  Do you have sandbags or other heavy things you could put on your knees?  Those helped me out a lot as a form of passive physical therapy that I could do just while lying in bed.

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Posted on Sep 12, 2014, 9:22 am
#237

just a question, how old are you and what's the average age at the hospital?
Thanks & good luck!

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Posted on Sep 13, 2014, 5:40 am
#238

A few more questions Kilo
1/ Can you ask about the Precice 2 nail when you next see Dr Parihar again. In the case of malfunction where the patient is not at fault like the recent one in South Africa, what does Dr Parihar do in those situations in terms of help for the patient? Will the replacement be extra charge or just an extra charge for the hospital fees?
2/ Do you think the food in India helps or is it bad for bone regeneration?
3/ What is your typical day like, I mean what do you do? Do you go out the hotel often?
4/ The extra physiotherapy you are doing atm, how much is that a session and do you think the price will be similar for Precice 2?
5/ How slow is the internet, for example Youtube, does it load slowly?

Probably a bad time to ask so many questions given you just had your first major complication and for that I apologise in advance. Answer them when ever you are able to

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Posted on Sep 14, 2014, 6:37 pm
#239

Quote from: Medium Drink Of Water on September 11, 2014, 06:44:54 PMWhat you described is common and normal, and nothing you can't stretch your way out of pretty quickly.  Do you have sandbags or other heavy things you could put on your knees?  Those helped me out a lot as a form of passive physical therapy that I could do just while lying in bed.

No sandbags. I've been going to the edge of the bed and elevating my feet onto the walker, which locks my knees out and causes them to push downward due to the walker being much higher. So far it seems to be working.

Quote from: Frihet on September 12, 2014, 09:22:46 AMjust a question, how old are you and what's the average age at the hospital?
Thanks & good luck!

Early 20s.

Not sure what the average age is. I've seen a bunch of children, teens, middle age, and geriatrics.

Quote from: ShortyMcShort on September 13, 2014, 05:40:25 AMA few more questions Kilo
1/ Can you ask about the Precice 2 nail when you next see Dr Parihar again. In the case of malfunction where the patient is not at fault like the recent one in South Africa, what does Dr Parihar do in those situations in terms of help for the patient? Will the replacement be extra charge or just an extra charge for the hospital fees?
2/ Do you think the food in India helps or is it bad for bone regeneration?
3/ What is your typical day like, I mean what do you do? Do you go out the hotel often?
4/ The extra physiotherapy you are doing atm, how much is that a session and do you think the price will be similar for Precice 2?
5/ How slow is the internet, for example Youtube, does it load slowly?

Probably a bad time to ask so many questions given you just had your first major complication and for that I apologise in advance. Answer them when ever you are able to

1) I'll ask him about the first one. I let him know about some of the issues with the nails not distracting that happened with patients of Dr Lee and Dr Birkholtz so he knows it could be an issue later. I've asked him about getting another internal option available to choose from and he's been thinking about it.

2) You can get all your nutritional needs here. Dr Parihar gives you pills for calcium and zinc, and you can also get it from the dairy and fish here. You can get your proteins through chicken, fish, and mutton. And there's no shortage of vegetables with so many here being vegetarian.

3) I haven't been going outside the hotel room much, just for a little bit to lounge in the lobby every once in a while. I have an HDTV in my room and a PS3 along with a bunch of DVDs and books in addition to my laptop, so that helps with the boredom. There's not much in terms of social interaction though being the only foreigner here and only one in frames.

4) I don't know yet. I've had two sessions so far and Dr Chaudhary hasn't said anything to me about money so I haven't paid anything so far.

5) I can watch youtube vids up to 480p fine. I have to pause for HD vids to load though. I think the average speed according to my cell phone is 19 mbps at this hotel, though at time it goes higher or lower depending on how many in the hotel are using it.

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Posted on Sep 15, 2014, 2:02 pm
#240

I've confirmed the price for physiotherapy is 1,000 INR (around $16.00 USD) per session when done outside the hospital. Worked out that I'll pay every 5 sessions.

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