Quote from: Polycrates. on September 30, 2014, 05:41:54 PMKahnny,
The electric jolts should subside immediately after distraction as I said before. I also do the same with my hips and it does really f**k up your whole gait, so you're lucky they pointed that out to you so you can't cheat. Bette to hear the truth than be told it's okay and think it's fine when it's not. Hang in there.
Yea I'm glad it was pointed out to me. Just disappointed that I was spending a lot of time doing that without realizing it. Seems like a whole lot of time standing was wasted because of it.
Quote from: ShortyMcShort on October 02, 2014, 06:18:59 AMHey Kilo I'd like to ask about humerus lengthening, which method did Dr Parihar say he'd use?
I didn't get into real specifics with him but I know from talking to Dr Divya that you can use externals with the unilateral frame and even use LON on humerus. For cosmetic cases I think he'd do both arms at once, as Divya said you can do so and that you don't really lose much function while lengthening the humerus.
Dr Parihar has done humerus lengthening many times before and said it's the easiest segment to lengthen. He showed me some x-rays of non-cosmetic humerus lengthening cases as well.
Quote from: highabovethesky on October 04, 2014, 11:04:07 PMi am newbie here...i have a question...may b its stupid....what u people think its better to have slim leg(tibia bone with least muscles) or its better to have big(tibia bone+lot of muscles) for external fixture??
Your calves are going to atrophy regardless, but I've spoken to some surgeons who seem sure that adding muscle to your calves before lengthening will be beneficial because it will mean increased blood flow to the area. Having more muscular calves sure seems to make the distraction hurt more than someone with thinner calves though.
No More Mal-Kahn-Tent - External Tibias - Dr Parihar
This question is almost exclusively just out of curiosity, but, while we're on the topic of arm lengthening, do you know of your team of doctors does forearm lengthening and if they'd be comfortable/safe doin it for cosmetic purposes? I've heard mixed opinions on forearm lengthening and am just curious. I've read that Dr. Solomon will do it for cosmetic reasons, but was wondering about Dr. Parihar, who is one of the few doctors I think I'd trust with such a risky procedure.
Personally, I don't expect my arms to look short after LL. I only plan on exceeding my wingspan by 2-3CM. However, as a last resort, if I did end up looking disproportionate, I think that humerus lengthening might only worsen proportions for me, because my humerus bones are already slightly longer than my forearms.
I was wondering if you could get Dr. Parihar's opinion on this if it isn't too much trouble. Thank you, by the way, and hang in there with the final stretch (pun intended) of your lengthening journey.
Quote from: Taller on October 06, 2014, 05:22:07 PMThis question is almost exclusively just out of curiosity, but, while we're on the topic of arm lengthening, do you know of your team of doctors does forearm lengthening and if they'd be comfortable/safe doin it for cosmetic purposes? I've heard mixed opinions on forearm lengthening and am just curious. I've read that Dr. Solomon will do it for cosmetic reasons, but was wondering about Dr. Parihar, who is one of the few doctors I think I'd trust with such a risky procedure.
Personally, I don't expect my arms to look short after LL. I only plan on exceeding my wingspan by 2-3CM. However, as a last resort, if I did end up looking disproportionate, I think that humerus lengthening might only worsen proportions for me, because my humerus bones are already slightly longer than my forearms.
I was wondering if you could get Dr. Parihar's opinion on this if it isn't too much trouble. Thank you, by the way, and hang in there with the final stretch (pun intended) of your lengthening journey.
I asked Dr Parihar about forearm lengthening a while ago and he told me that he does do it (though I forgot to ask him if he would specifically do it for a cosmetic case). He showed me a case where he had to do lengthening and deformity correction along with pictures showing the patient's retention of pronation and supination movements. He runs a blog for his site and the most recent blog posts are about forearm cases. The second one in particular is the case he showed me where lengthening was involved. It might be of interest to you.
http://ilizarov-india.blogspot.in/
I'll ask him next time I see him if he'd do forearm lengthening for cosmetic reasons.
Thanks for the information Kilokhan. Dr. Parihar's blog sure serves as a nice reminder that, compared to so many other people out there, we do have it very nice and are fortunate that we are getting put in frames voluntarily instead of out of necessity. Dr. Parihar's work is incredible in trauma cases, though, and it's uplifting to see him making such a positive difference in the lives of many injured and disabled people through his trauma repair procedures.
If you do ask him about cosmetic forearm lengthening, ask him if it is realistic to expect/hope for the retention of full pronation and supination capacity and capability after such lengthening.
Thanks!
Really though, going through the stories and treatments of the trauma patients featured on Dr. Parihar's blog really makes cosmetic lengthening seem like a silly and stupid thing and height neurosis like a trivial matter when compared to these often grotesque and tragic injuries and deformities. It's good to see these cases to put things into perspective.
Kilokhan, is it difficult, psychologically, to have to be in the clinic getting a procedure that you physically don't need while trauma patients who physically need Ilizarov look at you and possibly realize what is going on? Just out of curiosity, how do you rationalize cosmetic LL with a doctor who also does trauma cases from a moral or justice standpoint? How does Dr. Parihar rationalize or make sense of CLL? Does he only do it in cases of "debilitating" height neurosis, or also to fix "annoying" height neurosis. Both assuming that the patient is understanding of the procedure and willing to make the commitments required. Why does he preform CLL when the trauma/deformity patients "need" his Ilizarov skills so much for than cosmetic patients? I apologize if this is too personal, but this is something that has been on my mind a lot lately and I thought I'd ask.
Quote from: Taller on October 07, 2014, 01:30:34 PMIf you do ask him about cosmetic forearm lengthening, ask him if it is realistic to expect/hope for the retention of full pronation and supination capacity and capability after such lengthening.
Will do.
Quote from: Taller on October 07, 2014, 08:51:19 PMKilokhan, is it difficult, psychologically, to have to be in the clinic getting a procedure that you physically don't need while trauma patients who physically need Ilizarov look at you and possibly realize what is going on? Just out of curiosity, how do you rationalize cosmetic LL with a doctor who also does trauma cases from a moral or justice standpoint? How does Dr. Parihar rationalize or make sense of CLL? Does he only do it in cases of "debilitating" height neurosis, or also to fix "annoying" height neurosis. Both assuming that the patient is understanding of the procedure and willing to make the commitments required. Why does he preform CLL when the trauma/deformity patients "need" his Ilizarov skills so much for than cosmetic patients? I apologize if this is too personal, but this is something that has been on my mind a lot lately and I thought I'd ask.
Funny you should ask this now, because last Thursday while I was getting my rods changed by Dr Divya I told him that I sometimes feel a little awkward in the waiting room when I see people come in with bad deformities and extremely complicated frames on them. Mostly because they're going through so much time and pain just to get to functioning normally and here I am voluntarily having my legs broken. I've had people at the hospital come up to me more than once asking what happened to me and pointing out that it's strange I'm wearing a frame on both legs. I always just lied and said I was doing a bowleg correction, but it did force me to look at myself and realize that although I'm doing this in large part to escape the discrimination I've gotten throughout life for being shorter, part of it is definitely due to vanity to a degree.
I haven't spoken to Dr Parihar about his opinion on CLL. He did say during my consultation that he could do the surgery technically well and will do so for serious cosmetic patients, but whether or not he should do it for cosmetic cases is a different question entirely. I didn't go deeper than that, but I think I'll ask him about how he rationalizes cosmetic cases.
When you see Dr Parihar next, could you also ask him on his thoughts on lengthening both segments(tibia and femur) consecutively in the space of a whole year? For example, doing 5 or 6cms on tibias first using externals only and stay in India for the whole duration until frame removal and then proceed with Precice 2 femurs for 6 or 7 cms? And go home once the femurs are finished lengthening and be wheelchair bound until femurs are ok for weight bearing?
In my country you can get a one year medical visa so im quite curious about this, not sure if advisable but would like to get Dr Parihars input on the matter.
Thanks in advance Kilo
Quote from: Taller on October 06, 2014, 05:22:07 PMThis question is almost exclusively just out of curiosity, but, while we're on the topic of arm lengthening, do you know of your team of doctors does forearm lengthening and if they'd be comfortable/safe doin it for cosmetic purposes? I've heard mixed opinions on forearm lengthening and am just curious. I've read that Dr. Solomon will do it for cosmetic reasons, but was wondering about Dr. Parihar, who is one of the few doctors I think I'd trust with such a risky procedure.
Personally, I don't expect my arms to look short after LL. I only plan on exceeding my wingspan by 2-3CM. However, as a last resort, if I did end up looking disproportionate, I think that humerus lengthening might only worsen proportions for me, because my humerus bones are already slightly longer than my forearms.
I was wondering if you could get Dr. Parihar's opinion on this if it isn't too much trouble. Thank you, by the way, and hang in there with the final stretch (pun intended) of your lengthening journey.
Just got out of Dr Parihar's office not long ago and he would not be comfortable doing forearm lengthening for cosmetic purposes. He said there are too many things happening in the forearm and that it's very delicate in that there's a fine balance in the muscles of the forearm. So for him forearm lengthening for cosmetic purposes is as out there to him as clavicle lengthening and hip narrowing.
Humerus lengthening has none of those issues and he'd be okay with doing it. Might not be your ideal but it might look better with the humerus lengthening than with the shorter wingspan. Then again you may even look better with the shorter wingspan and it won't be noticeable.
Quote from: Taller on October 07, 2014, 08:51:19 PMHow does Dr. Parihar rationalize or make sense of CLL? Does he only do it in cases of "debilitating" height neurosis, or also to fix "annoying" height neurosis. Both assuming that the patient is understanding of the procedure and willing to make the commitments required. Why does he preform CLL when the trauma/deformity patients "need" his Ilizarov skills so much for than cosmetic patients? I apologize if this is too personal, but this is something that has been on my mind a lot lately and I thought I'd ask.
He told me that he doesn't have a black and white about it, and that he's not in the head of someone who thinks CLL is something they absolutely need in life so he can't say whether or not CLL is useless to that person. He then said that if there was a state sponsored thing where they provided medical treatment to people, then one has to think as to what patients have the priority and where should the money go, so in that sense treating deformities would take priority over CLL, but in a private setting it doesn't matter. He also said the reason I probably feel a little guilty about getting CLL is that I'm getting it done at his clinic where it's primarily deformities being treated, whereas if I went to one of the flashier settings with a doctor primarily doing CLL, I wouldn't see that side of things. It's also down to individual perception. Someone who isn't sympathetic to others in that situation would not feel guilty if 300 patients were paraded in front of them.
In the end I think he cares more about the prospective patient being absolutely sure that it's the right choice for him.
Quote from: ShortyMcShort on October 13, 2014, 05:58:57 AMWhen you see Dr Parihar next, could you also ask him on his thoughts on lengthening both segments(tibia and femur) consecutively in the space of a whole year? For example, doing 5 or 6cms on tibias first using externals only and stay in India for the whole duration until frame removal and then proceed with Precice 2 femurs for 6 or 7 cms? And go home once the femurs are finished lengthening and be wheelchair bound until femurs are ok for weight bearing?
In my country you can get a one year medical visa so im quite curious about this, not sure if advisable but would like to get Dr Parihars input on the matter.
Thanks in advance Kilo
In regards to lengthening femurs after tibias or vice versa, he said that you should wait until you're back at normal life after the first lengthening before considering a second. Dr Parihar is pretty conservative with how ambitious you should be. He won't even do cross lateral lengthening (even thinks it's crazy for people to do so).
nice info KiloKahn, hope all is going well for you.
Have to say, Dr Parihar sounds like a very respectable person, seems like a very good choice for anyone who wants to do LL for a good price.
Dr. Parihar is my ideal choice to do femurs with. I just have to see if he is willing to take me on as a patient. From what Kilokahn says, there are many people at his clinic undergoing external procedures on the femur for various deformities, so I am confident he can lengthen me safely with that method. The pain of external should be less than the pain of shelling out 40kUSD for a pair of precice nails.
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