Videos of Doctors, Specialists, etc. talking about LL (Merged Topic)

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I think I speak for everyone here when I say !!!!!!!!!!!!!WELL DONE CYBORG!!!!!!!!!!!!!

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did dr lee say that people recovered to about 70% in vigorous sports ?

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What a surprise. You actually got Dr. Lee on. Good job cyborg

He injects BMAC to all his tibia patients. That's really cool, never heard about this.

Also- what doctors did he mention at the very end? He said Paley, Rozbruch, then someone from Germany, and then Turkey.

Who did he say? From Germany and Turkey

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Wow, all the CLL legends getting interviewed by Cyborg. Great job, man. 

Dr. Lee is straight up and he even threw a couple of more CLL surgeon names into the hat!  He's right about recoverability, by the way.  Paraphrased, you should aim for 100% recovery but be ready to fall within the 70%-90% range.  Prepare for that.  Having gone through this surgery myself, returning to "just walking and jogging" comfortably within 6 to 9 months is easily attainable.  To approach and regain your old athletic self; well that can take 2 or more years. 

Good luck guys and I hope these great videos keep coming!

All the best,

IFS

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Quote from: ghkid2019 on July 17, 2020, 06:46:18 PMWhat a surprise. You actually got Dr. Lee on. Good job cyborg

He injects BMAC to all his tibia patients. That's really cool, never heard about this.

Also- what doctors did he mention at the very end? He said Paley, Rozbruch, then someone from Germany, and then Turkey.

Who did he say? From Germany and Turkey

Peter Thaller from Germany.

Hi Cybrog4life did you get a response from Dr. parihar or his assistant surgeon?

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Cyborg,

I hope you do not misunderstand the question I am willing to ask.
First of all, I have to admit that I literally watched all your videos and I find you pretty charming, a lovely and energetic human being and I'm so glad that you are doing okay, keeping yourself fit etc.

But the question is, why do you always comment on videos about LL on youtube, and also spend time for the interviews etc.
Are you doing this because you want to help people or are there another resaons? Like maybe you love science and this topic interests you or something.

What I mean is, you've already done this surgery 8 years ago, like why do you even care now; watching new videos about LL and commenting etc. If I were you, I'd completely forget about the LL and never ever use the forums nor the youtube resources.

Best Regards

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@ghkid2019 yeah it was Peter Thaller from Munich Germany but the other one I will have to ask to find out it was hard to make out.

@IFS I agree. Training like you want to regain 100% will get you much closer to it than not trying at all. One thing you may or may not be fully noticing by now is the new muscle tissue formed allows you to actually become stronger once it matures within 3-4 years. I noticed More muscle = more strength potential = more power and performance. Obviously takes time to adapt and get used to depending on leg length etc. which is something to look forward to also!

@limewalk unfortunately no. I've tried both Dr. Divvya and Dr. Parishard but no reply. I will occasionally followup though. I have gotten in contact with my Dr. Janet Conway who I plan to interview soon enough. She did great for me and even Dr. Paley gave her props after I went off air on my interview

@A fair question. So the main reason I started it was to answer questions in bulk that I'd get asked (and still do) on a daily basis.  Also, I just wanted to create a resource I wish I had when I was researching the procedure 8 years ago. I bootstrapped some info that was on the web but had to make a decision within 3 weeks before starting grad school the following year. I also try to focus presenting the information in a way the general population can understand it so maybe it would be a tad bit more understood idk.

Also, I always liked orthopedics (as I was considering becoming one) and when I consider I had been in and out of the hospital for 3 broken legs among other injuries, I guess this is my way to be involved a part of the field I like without fully committing to being a full-on surgeon. The people's spokesperson if you will.

It would've been easy to just not look back but that was before I got drawn in. Now it's a fun hobby where if I get asked a question enough I'll jot down some ideas and decide to shoot a video after work and upload it. I blame the answering of every comment on Gary Vaynerchuk and his talks on giving value to build brand and so here we are...#cyborgs

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You are a lovely human being, wish the best for you.

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Hey everyone,

I just wrapped up posting my Interview from today with Dr. Janet Conway at the International Center for Limb Lengthening at Sinai Hospital in Baltimore, MD.

I enjoyed the interview and great to reminisce with her (even if I forgot to turn my darn microphone on - crappy PC audio for me - her's was fine)

Here are some Time-Stamps for the interview:

TIME-STAMPS:

1:50 – Dr. Conway’s interest in field of Limb Lengthening

5:00 – How to determine how much length to gain safely

9:05 – Cool thing about the internal lengthening nail (PRECICE & STRYDE)

10:50 – Determining distraction rate & the fine line of lengthening

13:30 – Picking your limb lengthening surgeon wisely (experience is KEY!)

16:00 – Signs & Symptoms to look for during lengthening

18:05 – Time it takes to go from “Surgery” to “Walking w/out Assistance”

20:15 – Regaining a normal walking gait

23:20 – Physical Therapy Recommendations for the traveling or international patient during lengthening

26:20 – Importance of Flexibility BEFORE Surgery

27:25 – Pain management & preparation

31:05 – Should elite athletes even get stature lengthening in the first place?

33:35 – Benefits of having a world-class team of LL surgeons at ICLL Sinai Hospital – Baltimore, MD

37:30 – Best way to reach out and contact Dr. Conway for a consultation
 
38:45 – Final words to all prospective LL patients

Hope you're having a great week!

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Hey everyone here's a really informative Interview with the Dr. Paley's Director of Rehab - Dr. Fran Guardo (DPT).

She went on for nearly 2 hours pounding topics that talk about a variety of important details that you should know regarding LL. 

If you would like to see a particular topic, see the timestamps below…

1:30 – Dr. Guardo’s transition from traditional Physical Therapy to LL Rehab

3:55 – Why Physical Therapy is so important for Limb Lengthening Patients

13:00 – When PT actually starts after LL surgery

15:45 – Lengthening device differences & how it impacts PT

22:50 – STRYDE vs PRECICE internal lengthening nails

25:00 – Walking after surgery via Stryde Nail

26:05 – Benefit of weight bearing w/ Stryde Nail

27:45 – Discomfort levels of PT when planning to max out at the 8cm of
the nail

30:00 – Importance of Progression during PT sessions

33:40 – Waring Dorsiflexion bracing and @ home exercises

35:15 – Stature Lengthening Patients and Athletics/Fitness

37:00 – Good news for athletes! Patience w/ Caution will be best to get back

38:20 – The CAN and CANNOT DO’s after LL surgery

41:20 – Doing upper body exercises at the gym during lengthening

42:40 – Discharging a patient from PT with new rules

49:30 – Benefits of having good flexibility before surgery

53:30 – Supplement & Nutritino advice for PT

57:00 – When a patient regains normal walking gait depending on condition (CFD vs. LLD vs. CLL)

1:01:00 – When stature lengthening patients typically regain a normal walking gait

1:03:20 – Some videos from the Paley Institute PT department

1:10:00– Dr. Guardo stumps Victor with some trivia!

1:26:50 – Why ASTYM is such a gamechanger for Lengthening patients

1:31:30 – The structure of the Paley Rehab Dept.

1:35:00 – Rigid PT training reason for Track record of success

1:36:30 – Annual Conference for Training PT’s on Limb Lengthening and Treatments

1:40:00 – PT team is in close communication with Medical Team

1:43:20 – How to contact Dr. Guardo’s Rehab Department

1:44:40 – Final words of advice to prospective patients

-Have a good one!