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Posted on Jun 18, 2018, 10:38 am
#111

Quote from: Penguinn on June 18, 2018, 09:07:28 AMI'm not the one you asked, but I'd recommend 2 inches split tibias femurs, or 6cm femur + 5cm tibias or so. If you have the mental fortitude and the money, obviously. Proportions do matter(for practical and aesthetic reasons both) and staying within the safe limit would have boosted my recovery time, or so I think


I actually wanted to ask from Penguin sir only...just quoted the wrong quote.

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Posted on Jun 18, 2018, 11:01 am
#112

Quote from: Penguinn on June 18, 2018, 10:15:42 AMThe few seconds may not be concerning by itself, but it shows how far back in muscle recovery one gets sent. For example, I had that till a year post op or so. Having it again would mean getting sent back 10 months. Scheduled for nail removal + honest feelings on LL I'll quit sharing my fears now, this is your thread

On the bright side, you'll be better off eventually after doing nail removal. Do you think, for you, it's eventually gonna be like LL never happened?

Yes it does, it’s an invasive surgery after all and shouldn’t be taken lightly.
I’m hoping that it would feel like LL had never happened, however there will be scars to remind me of the procedure. Guess there is no running away from it.

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Posted on Jun 18, 2018, 11:16 am
#113

Quote from: totallyred on June 18, 2018, 08:26:28 AMHave you ever had any pain/implications/trouble/health issues due to the surgery in these2 years? Would you recommend it to others? Femur vs tibia which is better according to you?

Thanks in advance!

Yes I did experience chronic pain after a year post LL. Fortunately this wasn’t due to premature arthritis but the doctor suspected it was due to muscle atrophy which in turn caused muscle fatigue. The nail may have also contributed to the pain too.
Now that the nail is removed and intense physio of the legs, I haven’t experienced the chronic pain.
According to me, the safest route would be to external tibias, something that I was planning to do after my femurs. The reason is that it’s the least invasive, no reaming, lower risk of embolism, ability to have full control with the fixators. However the duration of the frames, pinsite infections and the scars are problematic. I personally would avoid any nailing to the tibias.
Internal femurs would be more comfortable,but it’s way more invasive than externals, higher risk of embolism, deep infection. Nail failure, cost and nail removal surgery are also things to think about.

It depends on how much you want to lengthen. If it’s a reasonable amount then you could aim for either external tibias or internal femurs, otherwise if you want to lengthen extreme amount, split it, as penguin mentioned above.

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Posted on Jun 18, 2018, 12:05 pm
#114

Quote from: Penguinn on June 18, 2018, 10:15:42 AMThe few seconds may not be concerning by itself, but it shows how far back in muscle recovery one gets sent. For example, I had that till a year post op or so. Having it again would mean getting sent back 10 months. Scheduled for nail removal + honest feelings on LL I'll quit sharing my fears now, this is your thread

On the bright side, you'll be better off eventually after doing nail removal. Do you think, for you, it's eventually gonna be like LL never happened?


Face the fire and get the nail removed ASAP. The faster you do it the faster it's over with and you'll get on with your life. You'll hate the decisions you make less when you do the things that you truly wish you did.

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Posted on Jun 18, 2018, 6:15 pm
#115

Quote from: Microbe on June 18, 2018, 11:16:30 AMAccording to me, the safest route would be to external tibias, something that I was planning to do after my femurs. The reason is that it’s the least invasive, no reaming, lower risk of embolism, ability to have full control with the fixators. However the duration of the frames, pinsite infections and the scars are problematic. I personally would avoid any nailing to the tibias.
Internal femurs would be more comfortable,but it’s way more invasive than externals, higher risk of embolism, deep infection. Nail failure, cost and nail removal surgery are also things to think about.


i don't know why almost all doctors prefer to do internals if money is not a problem. i think dr paley has even stopped doing externals altogether for CLL. externals are lighter on the bone, but harsher on soft tissues and muscles.

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Posted on Jun 18, 2018, 8:38 pm
#116

Quote from: fokid on June 18, 2018, 06:15:19 PMi don't know why almost all doctors prefer to do internals if money is not a problem. i think dr paley has even stopped doing externals altogether for CLL. externals are lighter on the bone, but harsher on soft tissues and muscles.

I think it’s mainly due to better patient comfort, and internals being relatively easier to perform compared to externals.

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Posted on Jun 19, 2018, 6:37 am
#117

Quote from: Johnson1111 on June 18, 2018, 12:05:58 PMFace the fire and get the nail removed ASAP. The faster you do it the faster it's over with and you'll get on with your life. You'll hate the decisions you make less when you do the things that you truly wish you did.


It's not just fear. This will need a long vacation and I won't have that for a long time.

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Posted on Jun 30, 2018, 11:20 pm
#118

-No chronic pain so far
-Did some jogging today and I couldn't believe how much better it feels without the nail inside
-So far I can say confidently that the nail removal has done wonders

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Posted on Jun 30, 2018, 11:38 pm
#119

Quote from: Microbe on June 30, 2018, 11:20:06 PM-No chronic pain so far
-Did some jogging today and I couldn't believe how much better it feels without the nail inside
-So far I can say confidently that the nail removal has done wonders


That's so awesome! You certainly deserve it after all this time dealing with the pain.

Very glad to hear it and hoping it never comes back.

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Posted on Jul 3, 2018, 8:42 am
#120

Quote from: Microbe on June 30, 2018, 11:20:06 PM-No chronic pain so far
-Did some jogging today and I couldn't believe how much better it feels without the nail inside
-So far I can say confidently that the nail removal has done wonders


Awesome. Until now I thought removal would make barely any difference because well, the nails are inside your bones..

Did jogging make your legs tired much quicker than pre-LL, prior to removal? That's my case. If removal can cure that, that'd be great. I'll get it done next year.

Also do you think it's the screws that cause more problems than the nail while inside your body? I can't imagine how the nails cause problems.

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