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Posted on Jun 17, 2020, 12:59 am
#1321

Quote from: Unicorn888 on June 16, 2020, 01:58:51 PMWow, I went through your journal and you and I had so many similar 'complications'. Chin up and keep fighting ok? We'll get there eventually and will be made whole again.


we did have similar complications but you endured this for 4 years you are extremely tough, this is the worst thing i have been through its a living hell until you get union and then it still takes time to recover.Β  we keep fighting and we will have a full recovery

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Posted on Jun 17, 2020, 2:46 am
#1322

QuoteOk, I thought Lo Pan was a chinese noodle dish or perhaps the wife of Taipan. I learnt something new today


I should clarify, it is David LoPan I'm referencing, not the weird headdress guy that shoots light out of his eyes.

Wow metallosis sounds fun 🀒

"Do not pray for an easy life, pray for the strength to endure a difficult one" you definitely proved ur mettle, keeping pushing πŸ’ͺ

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Posted on Jun 17, 2020, 9:03 am
#1323

I'm happy for you unicorn. Although it's not going to be easy,it sounds like you're finally on the road to recovery. You're getting cared for by proper doctors and at least now you have some sort of timeline/prognosis to look forward to. I'm wishing all the best for you.

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Posted on Jun 17, 2020, 11:20 am
#1324

POPEYE

Ok, chatty again since Class A drugs are coursing through my veins...

Actually, if you wanted to prepare for LL, the one thing that actually gets you ahead once your legs are freshly broken is arms of steel πŸ’ͺ. Work out your arms as that will save you many times over. And stretch like mad, even if it seems too late coz to gain extra flexibility, you do need years to torture your soft tissues, but something trumps nothing. And Trump IS nothing 🀑

Strong arms literally save you with every little movement because you're shifting pressure off your weak legs, and anyone with a broken bone can vouch that unnecessary movements are a killer. You'll need to lift your ass off the bed so many times a day, from fitting the bedpan under you, changing sheets, shifting from bed to transport for xrays/scans/tests, from even going to the loo coz who's gonna be there to lift your ass off the toilet seat? Definitely not Elon Musk πŸš€

Furthermore, crutching is purely arm strength. The stronger you are, the more effortless crutching becomes. This sounds really easy when written but in actual fact, when your arms tire quickly from crutching, your body auto shifts and compensates with your legs. And that is exactly what we don't want, to take additional risks on your legs when they're still jelly. Think of your arms as Uber, if that's unavailable, your next option is walking on stilts.

It's kinda like having 2 screaming babies when both your legs are burning. And if your arms are strained as well, that's 2 more screaming babies = 4 screaming babies. Enough to drive anyone mad!

And being in pain is the last thing your foggy brain needs as you waste precious mental capacity on your throbbing limbs instead of the countless dangers lurking around you. Anyone who's gone through LL can tell you that EVERYTHING is a hazard and an obstacle course, when your legs are broken.

Wet crutches are evil, furniture corners a devil's delight. Try manouevering a swing door or chasing a rotating door. The last time I had to go through one, the compartment behind me resembled a Tokyo subway during rush hour. There was a pile up of 20, crushed face-to-glass, cursing at me to hustle a little faster. That's one place you don't wanna get stuck in. The collective death stare from 40 eyeballs alone could paralyze Usain Bolt ⚑️

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Posted on Jul 1, 2020, 1:25 am
#1325

THE GOOD, THE BAD AND THE UGLY

Posting some timeline photos of the past 3 weeks. I never realised hip grafts take up to 3 months to heal. I'm on my 4th week of OxyCodone now and it scares the hell out of me because each time I try to stop, I'm overwhelmed with pain and severe withdrawal symptoms like a proper drug junkie πŸ’‰πŸ’ŠπŸ˜–

You can find new posts on https://www.instagram.com/unicorn_gets_taller/?hl=en as I attempt to let you step into my shoes with uncensored realities of LL; good, bad, ugly and all...

GRAFT FROM THE HIP BONE πŸ¦΄πŸ’£πŸ’₯
UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016

πŸ§Ÿβ€β™€οΈ UGLY HIP GRAFT SCARRING AND ECZEMA TO BOOT... BUY-ONE-GET-ONE-FREE 🎁
UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016


TOTAL LENGTH OF INCISIONS πŸ”ͺ 58CM, THAT'S ACTUALLY 1/3 OF MY STARTING HEIGHT ♿️
UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016


I AM THE REAL HOUSEWIFE OF πŸ‘°πŸ» FRANKENSTEIN
UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016


SURVIVING ALONE AFTER SURGERY... β˜£οΈβ˜ οΈβ›”οΈ
UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016


UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016


HEY, I SAID UNICORN CAKE... πŸŒˆπŸŽ‚πŸ¦„
UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016


UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016
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Posted on Jul 1, 2020, 10:00 am
#1326

Yes, I checked your Instagram last night and saw the pictures. I wish I could have left a comment and some likes but I opted out of social media a long time ago.Β  Regardless, I think you still look great and I see you have a great sense of fashion.
How are you recovering now? Can you walk?

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Posted on Jul 1, 2020, 11:24 am
#1327

Quote from: Arrogance on July 01, 2020, 10:00:49 AMYes, I checked your Instagram last night and saw the pictures. I wish I could have left a comment and some likes but I opted out of social media a long time ago.Β  Regardless, I think you still look great and I see you have a great sense of fashion.
How are you recovering now? Can you walk?


It's been pretty bad still.Β  I can barely walk but I can move better now sitting or lying down.

Walking is near impossible because our back is riddled with muscles and that's where I got sliced open. So any movement I make literally pulls at the weeping wound site and causes both skin and bone pain.

In addition, Oxycodone causes hypotension in me (low blood pressure), so I black out often. Hence, the blood transfusion in hospital - my blood pressure hovers btw 65 to 90 at best. I'm told it can take up to 3 months to heal from hip grafts.

I'm also suffering from Oxycodone dependency because everytime I try to reduce it, the pain comes charging back with a vengeance in addition to opioid withdrawal symptoms. So I'm not out of the woods yet. I never realized how invasive this surgery was. But when I think about it, it's unnatural to remove a chunk of your hip bone and have your entire femur canal drilled 14mm and debrided, to remove metal debris contamination.

And I was sliced open 58cm, which is a 3rd of my body length. No wonder my body is protesting. I do feel like a seabass being sliced open lengthwise and even had a nightmare of being marinated in salt, lime juice and jalapeno - to be served as a raw ceviche dish.

Anyway, I'm just taking this down time to highlight the realities of this surgery, answer questions and to promote better awareness/understanding of what CLL procedures entail and our anatomical reactions to them.

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Posted on Jul 1, 2020, 11:57 am
#1328

I am sorry all this happened to you unicorn. When you started the surgery I was in middle school. Today, I have graduated highschool and your recovery is still pending. Surely this will be the last procedure you need? Bone graft to fill in the gap in legs? Hopefully you will recover, and need not to suffer any more

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Posted on Jul 1, 2020, 3:32 pm
#1329

What did the doctors say about your final stage of recovery? Will you be back to normal?

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Posted on Jul 1, 2020, 10:01 pm
#1330

Quote from: ghkid2019 on July 01, 2020, 11:57:42 AMI am sorry all this happened to you unicorn. When you started the surgery I was in middle school. Today, I have graduated highschool and your recovery is still pending. Surely this will be the last procedure you need? Bone graft to fill in the gap in legs? Hopefully you will recover, and need not to suffer any more


OPPORTUNITY COSTS

CONGRATS!!!πŸŽ‰πŸŽŠπŸŽˆ Are you relieved? Happy to embark on your new journey? This was probably THE most exciting time of my life, flying the coop and going to college. If anyone had asked me to jump, I'd have said How High? (Debbie Gibson song... very telling of my old age πŸ‘΅πŸ»).

Last procedure? Maybe not. In the best case scenario, this could be the 2nd last surgery. Even if everything heals and fuses perfectly on the right leg, I still need to remove the Guichet stainless steel nail from my left leg because it has already proven to slough significant metal debris and cause contamination of the bone and soft tissues on my right leg. It's just that due to the severity of my current condition, the mere thought of removing a fully fused left leg nail is pure luxury (risk of fracture at removal because the Guichet nail is slightly too big for my asian femur diameter. Hence, while fused, my cortices are appallingly thin).

Your observation about the huge milestones you passed in the last 4 years is poignant. Because in contrast, my life was paused on every level, I achieved nothing in this entire time and the quality of life deteriorated with each passing year. I feel like Job in the Book of Job (not Steve) but the poor dude definitely lost way more cattle than my one cat. So he did suffer a worser fate than me and I'm probably taller than he'd be today, so that's some consolation πŸ₯Ά

That said, an interesting analogy to your remark is this. While 4 years would have represented 1/4 of your entire life, which is too much to lose at such a crucial age, it only robbed 1/10th of my life. So anyone planning to do LL should really consider the risks of having their lives put on hold for way longer than expected. It's one of the key risks to factor in alongside reserve funds, doctor, internal/external, femur/tibia, support network etc etc etc.

Why do I say this? Because without sufficient reserve/repair funds, if you run into trouble, very few people would be willing to help you. Even in the UK, it was a long shot to be accepted at the NHS because I voluntarily inflicted this on my healthy body, cosmetically, privately and foolishly. So, don't expect charity from anyone who's never considered/done LL. The world is not that sympathetic to our plight. To many, it’s a first world problem of the privileged few.

Same thing, missing out 1/4th of your life at such a critical juncture (high school, university, career, marriage, children etc) poses life-changing opportunity costs. If someone goes through LL between high school and university, and their life is frozen for several years... the impact it'll have on their fate is definitely more significant than it is for me in my 40s.

Remember that last scene in Back To The Future when Michael J Fox helped his teenage father overcome his bully? It was a life defining moment like many things are at your age. And the impact was huge, propelling his life to change 180 degrees from literally 'poor dad' to 'rich dad'.

At my age, while the opportunity costs are way less critical than yours, my biggest regret of these 4 years is my loss of ability to have children. While I was already at 11:59pm of my biological clock when I started LL, I was still hoping to meet someone, get married and have a family... or at least manage the one part I can control, have my own kid.

This is the opportunity cost of pivotal timing that I had colossally underestimated, doing LL surgery in 2016. I foolishly lapped up all of Guichet's fast track 3-months sales pitch instead of wisely assessing the long-term consequences should things go horribly wrong. Like in a Sliding Door moment. (another old movie πŸ‘΅πŸ»).. I could be a happy single mum today having chosen to have a baby on my own in 2016 vs becoming taller albeit crippled in every way. It's this one lapse of judgement that will forever taint my life.

So today, I brace myself for the harsh reality of 'not having anything at all' (vs the smug aspiration of 'having it all'). Even if I could biologically conceive a baby at this age and poor health, I can't even afford to feed it. Alone, I'm merely surviving on Β£40 per week of groceries and making ends meet to pay my monthly mortgage to avoid becoming homeless too. Everything else is really optional. My eBay site literally lists everything I own at 50% off because nothing in there could heal me any sooner.

Anyway, not to drag you through my pity party, I'm just making a point that timing to do LL is just as crucial as having enough reserve funds for repairs. Just because the opportunity costs could be damning high and we end up metaphorically β€˜paying’ for our mistake for the rest of our lives. Think Poor Dad, Rich Dad...

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